ArticlePediatric diabetes2021
Hispanic Caregivers' experience of pediatric type 1 diabetes: A qualitative study.
Article in Pediatric diabetes, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
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Who cites it
13 citing papers in PubMed.
- Caregiver and Patient Experiences With the Diabetes Care Team Impact Utilization of Medical Nutrition Therapy in Pediatric Type 1 Diabetes.The science of diabetes self-management and care · 2026Article
- Beyond access: Racial and socioeconomic disparities in device use among youth with type 1 diabetes.SSM. Qualitative research in health · 2026Article
- Patient, family and provider experiences with a very low-carbohydrate approach for type 1 diabetes.Journal of metabolic health · 2026Article
- The Role of Community Health Workers in Improving Diabetes Device Use Among Youth With Type 1 Diabetes: A Web-Based Qualitative Study Using Human-Centered Design With Clinicians.JMIR diabetes · 2025Article
- Patient-centered communication and its impact on minority health competence and outcomes in the United States.Scientific reports · 2025Article
- "I Just Wish That It Would Be Easier": Caregivers' Perspectives on Barriers and Proposed Solutions to Diabetes Technology Use for Non-Hispanic Black and Hispanic Youth With Type 1 Diabetes.Diabetes spectrum : a publication of the American Diabetes Association · 2025Article
- Patient Characteristics Associated With Annual Nutrition Visits in Children With Type 1 Diabetes.Pediatric diabetes · 2025Article
- A Retrospective Cohort Study of Racial/Ethnic and Socioeconomic Disparities in Initiation and Meaningful Use of Continuous Glucose Monitoring Among Youth With Type 1 Diabetes.Journal of diabetes science and technology · 2024Article
- Type 1 diabetes care delivery in Yaoundé, Cameroon: Social and political representations.African journal of primary health care & family medicine · 2024Article
- Experiences With Outpatient Nutrition Services Among Caregivers of Youth With Type 1 Diabetes.Diabetes spectrum : a publication of the American Diabetes Association · 2024Article
- Endocrine Health and Health Care Disparities in the Pediatric and Sexual and Gender Minority Populations: An Endocrine Society Scientific Statement.The Journal of clinical endocrinology and metabolism · 2023Article
- Support Provided by Caregivers for Community-Dwelling Diabetic Hispanic Adults with Intellectual Disabilities and Comorbid Conditions.International journal of molecular sciences · 2023Review
- Trends in Type 1 Diabetic Ketoacidosis During COVID-19 Surges at 7 US Centers: Highest Burden on non-Hispanic Black Patients.The Journal of clinical endocrinology and metabolism · 2022Article
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
objectiveIt is widely recognized that Type 1 Diabetes (T1D) outcomes are worse among Hispanic children; however, little is published about the perspectives of these patients and their caregivers. Our intent was to characterize the lived experience of Hispanic caregivers of children with T1D, focusing on the role of language and culture and their perspectives on current medical care and alternative care models. We studied Hispanic caregivers of patients (age 2-17 years) with T1D of greater than 6 months' duration. RESEARCH DESIGN AND
methodsWe completed semi-structured interviews and focus-groups of a purposive sample of 20 members of our population of interest. We developed a codebook and completed multidisciplinary consensus coding, then conducted iterative thematic analysis using qualitative software and discussion to generate themes.
resultsWe gathered data from 20 Hispanic caregivers of T1D patients (11.37 ± 3.00 years old, 4.80 ± 2.84 years since diagnosis). 85% of caregivers were female, 80% preferred Spanish, and 15% were college-educated. Our analysis yielded 4 themes across the participants: (1) Culturally-based nutrition challenges, (2) Social isolation and lack of support for T1D care, (3) Hesitancy to fully embrace diabetes technology, and (4) Deferential views of care experience and providers. Overarching all of these themes was support for Hispanic group-based models of care tailored to address these concerns.
conclusionsThe unique concerns among Hispanic caregivers of children with T1D suggest the importance of culturally tailored interventions to improve care. With successful implementation, such interventions could diminish widening disparities in healthcare outcomes.
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