Evidence map›Paper›PMID 34232419›Full record

Trial reportJournal of autism and developmental disorders2022

Development, Feasibility, and Acceptability of a Nationally Relevant Parent Training to Improve Service Access During the Transition to Adulthood for Youth with ASD.

Julie Lounds Taylor, Florencia Pezzimenti, Meghan M Burke, Leann Smith DaWalt, Chung Eun Lee, Carol Rabideau

Registry-linked trialAbstract readRandomized Controlled Trial
In one paragraph

Trial report in Journal of autism and developmental disorders, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04173663 (Project ASSIST), which is not on this map. Cited by 15 papers.

0numbers the graph read from it
0cells of the map it votes in
15citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT04173663 nacompletednot on this map

Project ASSIST: Advocating for Supports to Improve Service Transitions

TypeinterventionalSponsorVanderbilt University Medical CenterRan2020 to 2023Enrolled185ConditionsAutism Spectrum Disorder, AutismArmsASSIST
3 · Its place in the literature

Who cites it

15 citing papers in PubMed.

  1. The Effect of a Parent Advocacy Intervention on Service Access for Autistic Youth: The Moderating Role of Baseline Advocacy Ability.Autism research : official journal of the International Society for Autism Research · 2026
    Trial
  2. Testing an Advocacy Program to Improve Service Access Among Latino Families of Autistic Youth: A Randomized Controlled Trial.Autism research : official journal of the International Society for Autism Research · 2025
    Trial
  3. Improving parents' ability to advocate for services for youth with autism: A randomized clinical trial.Autism research : official journal of the International Society for Autism Research · 2023
    Trial
  4. Article
  5. Article
  6. Article
  7. MilitaryAdvances in neurodevelopmental disorders · 2025
    Article
  8. Advances in neurodevelopmental disorders · 2025
    Article
  9. Article
  10. Article
  11. Article
  12. Medicaid Disruption Among Transition-Age Youth on the Autism Spectrum.Medical care research and review : MCRR · 2022
    Article
  13. Article
  14. Article
  15. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Julie Lounds TaylorDepartment of Pediatrics, Vanderbilt University Medical Center, Nashville, USA. Julie.l.taylor@vanderbilt.edu.ORCID http://orcid.org/0000-0002-3904-3476
Florencia PezzimentiDepartment of Pediatrics, Vanderbilt University Medical Center, Nashville, USA.ORCID http://orcid.org/0000-0003-3704-769X
Meghan M BurkeDepartment of Special Education, University of Illinois Urbana-Champaign, Champaign, USA.
Leann Smith DaWaltWaisman Center, University of Wisconsin-Madison, Madison, USA.
Chung Eun LeeDepartment of Pediatrics, Vanderbilt University Medical Center, Nashville, USA.
Carol RabideauVanderbilt Kennedy Center, Vanderbilt University Medical Center, Nashville, USA.

Funding

The Vanderbilt Institute for Clinical and Translational Research (VICTR)UL1TR000445 · NCATS · VANDERBILT UNIVERSITY MEDICAL CENTER · PI BERNARD, GORDON RAPHAEL · 2012 to 2016
$41.4M
Overall: Eunice Kennedy Shriver Intellectual and Developmental Disabilities Research Center at VanderbiltP50HD103537 · NICHD · VANDERBILT UNIVERSITY MEDICAL CENTER · PI Lea K Davis · 2020 to 2026
$10.3M
Waisman Intellectual and Developmental Disabilities Research Center Down Syndrome RegistryU54HD090256 · NICHD · UNIVERSITY OF WISCONSIN-MADISON · PI POLLAK, SETH D · 2016 to 2020
$6.0M
Improving Transition Outcomes for Youth with Autism through Parent Advocacy Training: A Multi-State Randomized Controlled TrialR01MH116058 · NIMH · VANDERBILT UNIVERSITY MEDICAL CENTER · PI TAYLOR, JULIE LOUNDS · 2019 to 2023
$4.1M
NCATS NIH HHS UL1 TR000445NICHD NIH HHS P50 HD103537NICHD NIH HHS U54 HD090256NIMH NIH HHS R01 MH116058
6 · The paper itself

Abstract

Many youth with autism spectrum disorder (ASD) face challenges accessing needed services as they transition to adulthood. The present study describes the development, feasibility and acceptability of a new intervention designed to teach parents of transition-aged youth with ASD about the adult service system and the most effective ways to access services and supports. As part of a randomized-controlled trial, the intervention-named ASSIST-was delivered to 91 participants in three states in the U.S. Results suggested that ASSIST is feasible and acceptable to participants. Though intended to be an in-person group-based program, due to COVID-19 restrictions ASSIST was primarily delivered online. Results and discussion explore the trade-offs and implications of these different treatment delivery modalities in relation to ASSIST.

Indexed as

Autism Spectrum DisorderCOVID-19AdolescentAdultAgedFeasibility StudiesHumansParentsAutism spectrum disorderFamiliesInterventionServicesTransition to adulthood

Identifiers

PMID34232419
PMCPMC8262127

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.