Evidence map›Paper›PMID 34232121›Full record

ArticleJMIR pediatrics and parenting2021

Perceptions of Social Media Use to Augment Health Care Among Adolescents and Young Adults With Cystic Fibrosis: Survey Study.

Ryan C Perkins, Rachel Gross, Kayla Regan, Lara Bishay, Gregory S Sawicki

Open access · goldAbstract read
In one paragraph

Article in JMIR pediatrics and parenting, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
0.7field-weighted citation impact, top 28% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 7 citations in OpenAlex.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 3 institutions in 1 country.

Ryan C Perkins *Division of Pulmonary Medicine, Boston Children's Hospital, Boston, MA, United States.ORCID https://orcid.org/0000-0002-2470-9079
Rachel GrossDivision of Pulmonary Medicine, Boston Children's Hospital, Boston, MA, United States.ORCID https://orcid.org/0000-0002-3498-2458
Kayla ReganDivision of Pulmonary Medicine, Boston Children's Hospital, Boston, MA, United States.ORCID https://orcid.org/0000-0002-1517-7592
Lara BishayDivision of Pulmonary and Sleep Medicine, Children's Hospital of Los Angeles, Los Angeles, CA, United States.ORCID https://orcid.org/0000-0002-0204-8046
Gregory S SawickiDivision of Pulmonary Medicine, Boston Children's Hospital, Boston, MA, United States.ORCID https://orcid.org/0000-0003-3356-709X
Boston Children's Hospital · USBrigham and Women's Hospital · USChildren's Hospital of Los Angeles · US

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundFor individuals with cystic fibrosis (CF), adolescence and young adulthood are times of significant vulnerability and have been associated with clinical and psychosocial challenges. Social media may offer innovative care delivery solutions to address these challenges.

objectiveThis study explored motivations and attitudes regarding current social media use and preferences for a social media platform in a sample of adolescents and young adults (AYA) with CF.

methodsA cross-sectional survey was administered to 50 AYA with CF followed at a large pediatric-adult CF center. The survey included questions regarding social media platform utilization, attitudes toward general and CF-specific online activities, and preferences for a CF-specific care delivery platform.

resultsYouTube, Snapchat, and Instagram were the most commonly used social media platforms. AYA with CF do not report routinely using social media for health-related information acquisition, social support, or help with adherence. However, their perceptions of social media utilization and preferences for platform development suggest interest in doing so in the future.

conclusionsAYA with CF use social media and expressed interest in the development of a social media platform. Platform development will allow for gaps in health care delivery to be addressed by improving social support and adherence while augmenting current methods of health information acquisition.

Indexed as

adherenceadolescentscystic fibrosismobile healthsocial mediayoung adults

Identifiers

PMID34232121
PMCPMC8406102
OpenAlexW3183027151

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.