ArticleJournal of policy and practice in intellectual disabilities2021
The Experiences of Carers of Adults With Intellectual Disabilities During the First COVID-19 Lockdown Period.
Article in Journal of policy and practice in intellectual disabilities, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.
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Who cites it
19 citing papers in PubMed, 37 citations in OpenAlex.
- Experiences of typically developing siblings of children with profound intellectual and multiple disabilities during the COVID-19 pandemic in Poland.International journal of developmental disabilities · 2026Article
- Family Support Experiences of Adult Persons with Intellectual Disability and Challenging Behaviour: A Scoping Review of Qualitative Studies.International journal of environmental research and public health · 2025Article
- Navigating a New Normal: A Qualitative Look at Long-Term Care Planning for Children with Intellectual Disabilities Post-COVID-19.Healthcare (Basel, Switzerland) · 2024Article
- Effectiveness of Online Programmes for Family Carers of People with Intellectual Disabilities: Systematic Review of the International Evidence Base.Healthcare (Basel, Switzerland) · 2024Review
- Experiences of people with intellectual disabilities during the COVID-19 pandemic. A thematic synthesis.International journal of developmental disabilities · 2024Article
- Article
- Mental health and coping strategies of caregivers of people with intellectual and developmental disabilities: the initial impact of the COVID-19 pandemic in Brazil.International journal of developmental disabilities · 2024Article
- An update of the reported effects of the COVID-19 pandemic on person with intellectual disability and their carers: a scoping review.Annals of medicine · 2023Article
- Care and rehabilitation institutions for people with intellectual disabilities during the COVID-19 pandemic: Polish experiences.International social work · 2023Article
- Experiences of parents of children with rare neurogenetic conditions during the COVID-19 pandemic: an interpretative phenomenological analysis.BMC psychology · 2023Article
- Vulnerable but stronger together: An interpretative phenomenological analysis of the experiences of mothers of young adults with profound intellectual and multiple disabilities during the COVID-19 pandemic.Journal of intellectual & developmental disability · 2023Article
- Impact of COVID-19 Pandemic on Caregivers of People with an Intellectual Disability, in Comparison to Carers of Those with Other Disabilities and with Mental Health Issues: A Multicountry Study.International journal of environmental research and public health · 2023Article
- Impact of the COVID-19 pandemic on family carers of those with profound and multiple intellectual disabilities: perspectives from UK and Irish Non-Governmental Organisations.BMC public health · 2022Article
- Parents with intellectual disability reporting on factors affecting their caregiving in the wake of the COVID-19 pandemic: A qualitative study.Journal of applied research in intellectual disabilities : JARID · 2022Article
- The impact of lockdown on young people with genetic neurodevelopmental disabilities: a study with the international participatory database GenIDA.BMC psychiatry · 2022Article
- Mental health and COVID-19: The impact of a virtual course for family caregivers of adults with intellectual and developmental disabilities.Journal of intellectual disability research : JIDR · 2022Article
- Social support as a mediator of stress and life satisfaction for people with intellectual or developmental disabilities during the COVID-19 pandemic.Journal of applied research in intellectual disabilities : JARID · 2022Article
- The double burden of COVID-19 and Israeli military rule on persons with disabilities in the West Bank of the occupied Palestinian territory.Frontiers in psychology · 2022Article
- Impact of a Remotely Supervised Motor Rehabilitation Program on Maternal Well-Being During the COVID-19 Italian Lockdown.Frontiers in psychology · 2022Review
Corrections and comments
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Authors and funding
11 authors at 8 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Background: The recent COVID-19 pandemic led to widespread international restrictions, severely impacting on health and social care services. For many individuals with an intellectual disability (ID) this meant reduced access to services and support for them and their carers. Aim: The aim of this study was to gain insight into the ways parents of adults with ID coped during the first 2020 lockdown period. Methods: Eight parents of adults with ID were interviewed. The recordings of these interviews were subjected to a thematic analysis. Results: Four main themes were identified: powerless and unappreciated; coping under lockdown; support; and the impact of lockdown on well-being. Conclusions: The parents of adults with ID who made up our sample reported that they received little support from services and experienced a sense of powerlessness. Nevertheless, they were open to accepting support from family and friends and showed remarkable resilience. These findings are discussed in the light of the Willner et al. (2020) survey results on parental mental health and coping, and suggestions for future service provision during pandemic conditions are proposed.
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