ArticlePalliative medicine2021
Organizational and individual barriers and facilitators to the integration of pediatric palliative care for children: A grounded theory study.
Article in Palliative medicine, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers, 1 of them a synthesis that pooled it.
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Who cites it
10 citing papers in PubMed, 1 synthesis or guideline pooled it, 35 citations in OpenAlex.
- Parental experiences in pediatric advance care planning for children with life-limiting illnesses: a qualitative meta-synthesis.BMC palliative care · 2026Pooled it
- A qualitative study exploring the pros and cons of universal pediatric palliative care referral at diagnosis for children with cancer.Palliative & supportive care · 2026Article
- Paediatric palliative care following hospital discharge: Prevalence and factors associated with non-continuity of palliative care for children with cancer in Busoga sub-region-eastern Uganda; A mixed methods study.PLOS global public health · 2026Article
- What do pediatric transplant physicians think about palliative care? Results from a national survey study.Bone marrow transplantation · 2025Article
- Barriers and facilitators influencing referral and access to palliative care for children and young people with life-limiting and life-threatening conditions: a scoping review of the evidence.Palliative medicine · 2024Article
- Children with palliative care needs - the landscape of the nordic countries.BMC palliative care · 2024Article
- Palliative care services in paediatric oncology centres across Europe: A cross-sectional survey.EJC paediatric oncology · 2023Article
- "Some things are even worse than telling a child he is going to die": Pediatric oncology healthcare professionals perspectives on communicating with children about cancer and end of life.Pediatric blood & cancer · 2022Article
- Palliative Care in Paediatric Oncology: an Update.Current oncology reports · 2022Review
- Therapeutic Effect of Music Therapy on Patients with End-stage Cancer: A Retrospective Study.Noise & healthArticle
Corrections and comments
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Authors and funding
5 authors at 4 institutions in 3 countries.
Funding
Abstract
backgroundPediatric palliative care has established benefits for children with cancer and their families. Overcoming organizational and healthcare provider barriers have been demonstrated as central for the provision of palliative care in pediatric oncology. A deeper understanding is needed of the influence of these barriers and the interactions between them, specifically in primary palliative care in hospital settings.
aimTo identify the organizational and healthcare provider barriers to the provision of primary pediatric palliative care.
designThis study utilized the grounded theory method. Semi-structured interviews were conducted and analyzed line by line, using NVivo software. SETTING/
participantsForty-six pediatric oncologists, nurses, psychosocial team members, and other healthcare providers from six academic hospital centers participated in the research.
resultsOrganizational and healthcare provider factors were identified, each of which acted as both a barrier and facilitator to the provision of pediatric palliative care. Organizational barriers included lack of resources and management. Facilitators included external resources, resource management, and a palliative care center within the hospital. Individual barriers included attitudes toward palliative care among pediatric oncologists, pediatric oncologists' personalities, and the emotional burden of providing palliative care. Facilitators include dedication and commitment, initiative, and sense of meaning. Provider facilitators for palliative care had a buffering effect on organizational barriers.
conclusionOrganizational and healthcare provider factors influence the quality and quantity of palliative care given to children and their families. This finding has implications on interventions structured to promote primary palliative care for children, especially in healthcare systems and situations where resources are limited.
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