Evidence map›Paper›PMID 34215229›Full record

ArticleBMC health services research2021

Who are the beneficiaries and what are the reasons for non-utilization of care respite and support services? A cross-sectional study on family caregivers.

Jianan Huang, Nadja Münzel, Anke Scheel-Sailer, Armin Gemperli

Open access · goldAbstract read
In one paragraph

Article in BMC health services research, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
0.8field-weighted citation impact, top 20% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 5 citations in OpenAlex.

  1. Article
  2. Review
  3. Article
  4. Article
  5. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors at 2 institutions in 1 country.

Jianan HuangSwiss Paraplegic Research, Guido A. Zäch Strasse 4, 6207, Nottwil, Switzerland.
Nadja MünzelParaHelp AG, Guido A. Zäch Strasse 1, 6207, Nottwil, Switzerland.
Anke Scheel-SailerSwiss Paraplegic Centre, Guido A. Zäch Strasse 1, 6207, Nottwil, Switzerland.
Armin GemperliSwiss Paraplegic Research, Guido A. Zäch Strasse 4, 6207, Nottwil, Switzerland. armin.gemperli@paraplegie.ch.ORCID http://orcid.org/0000-0002-2363-0625
Swiss Paraplegic Research · CHUniversity of Lucerne · CH

Funding

Schweizerischer Nationalfonds zur Förderung der Wissenschaftlichen Forschung 160158
6 · The paper itself

Abstract

backgroundFamily caregivers assume substantial caregiving responsibilities for persons with chronic conditions, such as individuals with spinal cord injury, which leads to negative impacts on their lives. Respite care and other services are provided as a temporary relief and support for them. Design of appropriate respite care programs depends on identification of beneficiary subgroups for the different types of service. This study aimed to quantify the uptake of different respite and support services for family caregivers, the reasons for non-use, and to explore the respective predictors.

methodsA cross-sectional survey of family caregivers of persons with spinal cord injury was conducted nationwide in Switzerland. The use of 11 different respite and support services during the previous 12 months was investigated, along with caregivers' reasons for not using any respite. Classification trees were used to characterize the beneficiaries and reasons for not using respite.

resultsAbout a third of family caregivers used at least one type of respite or support service during the previous 12 months. Utilization of respite care was greater among those who employed professional home care (57% vs 24% of those without professional home care). Marked cantonal differences were also observed in utilization of respite care. The primary reason for not using respite services was "no demand" (80% of non-users of respite services), mainly among caregivers who were less emotionally affected by their caregiving tasks.

conclusionsUtilization of respite and support services depends more on place of residence and use of home care services than on functional status of the care recipient. Accordingly, programs should be tailored to the cultural context of their potential users. This is best achieved through coordination with local health care professionals who can identify needs, provide information, initiate referrals, and integrate the care into a larger support plan.

Indexed as

CaregiversHome Care ServicesCross-Sectional StudiesHumansRespite CareSwitzerlandChronic conditionsClassification treeFamily caregiversRespite care

Identifiers

PMID34215229
PMCPMC8254343
OpenAlexW3177340584

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.