Evidence map›Paper›PMID 34210984›Full record

ReviewNPJ genomic medicine2021

Genetic discrimination: introducing the Asian perspective to the debate.

Hannah Kim, Calvin W L Ho, Chih-Hsing Ho, P S Athira, Kazuto Kato, Leonardo De Castro, Hui Kang, Richard Huxtable, Hub Zwart, Jonathan Ives and 3 more

Abstract readReview
In one paragraph

Review in NPJ genomic medicine, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
27citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

27 citing papers in PubMed, 1 synthesis or guideline pooled it.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Hannah KimAsian Institute for Bioethics and Health Law, Yonsei University College of Medicine, Seoul, South Korea.ORCID http://orcid.org/0000-0003-2938-9745
Calvin W L HoUniversity of Hong Kong, Hong Kong, China.
Chih-Hsing HoAcademia Sinica, Taipei City, Taiwan.
P S AthiraNational University of Advanced Legal Studies, Kochi, India.ORCID http://orcid.org/0000-0002-7458-6943
Kazuto KatoDepartment of Biomedical Ethics and Public Policy, Graduate School of Medicine, Osaka University, Osaka, Japan.
Leonardo De CastroUniversity of the Philippines, Quezon City, Philippines.ORCID http://orcid.org/0000-0001-6287-588X
Hui KangBGI-Shenzhen, Shenzhen, China.ORCID http://orcid.org/0000-0002-5988-3253
Richard HuxtableCentre for Ethics in Medicine, University of Bristol, Bristol, UK.
Hub ZwartErasmus University Rotterdam, Rotterdam, The Netherlands.
Jonathan IvesCentre for Ethics in Medicine, University of Bristol, Bristol, UK.
Ilhak LeeAsian Institute for Bioethics and Health Law, Yonsei University College of Medicine, Seoul, South Korea.
Yann JolyCentre of Genomics and Policy, McGill University, Montreal, QC, Canada. syoonkim@yuhs.ac.ORCID http://orcid.org/0000-0002-8775-2322
So Yoon KimAsian Institute for Bioethics and Health Law, Yonsei University College of Medicine, Seoul, South Korea. yann.joly@mcgill.ca.ORCID http://orcid.org/0000-0001-7015-357X

Funding

National Research Foundation of Korea (NRF) 2018K2A9A1A01090613
6 · The paper itself

Abstract

Our article aims to provide a comprehensive portrayal of how seven Asian jurisdictions have sought to address the challenge of genetic discrimination (GD) by presenting an analysis of the relevant legislation, policies, and practices. Based on our findings, policy discussion and action on preventing or mitigating GD have been narrowly framed in terms of employment, insurance, disability, marriage, and family planning. Except for South Korea, none of the jurisdictions we examined has adopted specific legislation to prevent GD. However, for Asia to truly benefit from its recent scientific and technological progress in genomics, we highlight the need for these jurisdictions to engage more proactively with the challenges of GD through a coordinated regulatory and governance mechanism.

Identifiers

PMID34210984
PMCPMC8249378

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.