ArticleBrain sciences2021
Caregivers' Burden of School-Aged Children with Neurodevelopmental Disorders: Implications for Family-Centred Care.
Article in Brain sciences, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 1 of them a synthesis that pooled it.
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Who cites it
21 citing papers in PubMed, 1 synthesis or guideline pooled it, 40 citations in OpenAlex.
- Psychiatric manifestations in Neuronal ceroid lipofuscinoses.Orphanet journal of rare diseases · 2026Pooled it
- Economic Evaluation of Interventions for Children with Neurodevelopmental Disorders: Practical Guidance.PharmacoEconomics · 2026Review
- Barriers to Health Equity and Contributors to Health Disparities Among Individuals with Intellectual and Developmental Disabilities: A Narrative Review.Future (Basel, Switzerland) · 2026Article
- Pilot Study of Physical and Psychosocial Health Outcomes and Caregiver Burden in Mothers of Children with Physical Disabilities in Türkiye: A Cross-Sectional Analysis.Healthcare (Basel, Switzerland) · 2026Article
- First report of an inherited MYCBP2 neurodevelopmental disorder: review of proband and parent presentation.Neurogenetics · 2026Review
- 'I may have to give up on my career.' Breadwinners or caregivers? Exploring the complexities of work-family conflict among parents of children with neurodevelopmental disabilities.International journal of developmental disabilities · 2026Article
- Article
- A randomised controlled study of dog assisted therapy: comparing a short and a long version for patients with fetal alcohol spectrum disorder.Frontiers in psychology · 2026Article
- Theoretical framework of the neuro and psychomotor therapist for developmental age: an Italian perspective for paediatric rehabilitation of neurodevelopmental disabilities.Frontiers in medicine · 2026Article
- Caregiver Burden and Psychological Distress in Parents of Children with Neurodevelopmental Disorders: The Mediating Roles of Rumination and Hopelessness.Journal of autism and developmental disorders · 2025Article
- Article
- Quality of life among parents of autistic children: questionnaire validation study and multivariate analysis of associated factors.Frontiers in psychiatry · 2025Article
- Centering caregiver voices on caregiving needs of children with neurodevelopmental disorders in low-resource settings.PloS one · 2025Article
- Impact of model physiotherapy centres in reducing the burden among the caregivers of children with neurodevelopmental disorders in the rural area of Tamil Nadu: a study protocol.Journal of health, population, and nutrition · 2024Article
- Associated impairments among children with cerebral palsy: findings from a cross-sectional hospital-based study in Vietnam.BMJ open · 2024Article
- Prevalence of Adverse Childhood Experiences in Adolescents with Special Educational and Care Needs in the Netherlands: A Case-File Study of Three Special Educational and Care Settings.Journal of child & adolescent trauma · 2024Article
- Relationship between sleep disturbance and developmental status in preschool-aged children with developmental disorder.BMC pediatrics · 2024Article
- Caregiver Burnout in Pediatric Laryngomalacia: The Role of Clinical and Psychological Factors.Cureus · 2023Article
- Article
- The phenotypic presentation of adult individuals withFrontiers in neuroscience · 2023Article
Corrections and comments
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Authors and funding
6 authors at 4 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Caregivers of children with neurodevelopmental disorders play a central role during the rehabilitation and education processes, but they have an increasing risk of psychosocial problems even if the literature is not so agreed upon the specific and predisposing factors to that. The aim of this study was to examine possibly differences of burden levels in an Italian sample of principal caregivers of children with different kinds of neurodevelopmental disorders and to investigate the possible links between some clinical and sociodemographic variables and the levels of caregiver's burden. 105 caregivers of school-aged children with neurodevelopmental disorders were included in the study and completed three online questionnaires (General Questionnaire, Caregiver Burden Inventory, Zarit Caregiver Burden Scale). Results highlighted that about the half of caregivers show from moderate to high levels of stress, but parents of children with Autism Spectrum Disorder and Intellectual Disability show greater difficulties than parents of children with Attention-Deficit Hyperactivity Disorder, Language and/or Learning Disorder, and Developmental Coordination Disorder. Moreover, it was evident a negative correlation between the burden levels and the age of children, but also a direct correlation between the burden levels and the weekly hours of rehabilitation. These findings show that severity of caregiver's burden is dependent by the type of neurodevelopmental disorder and suggest that an ecological and family-centred approach is necessary to guarantee the life health developmental course of these children.
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