ArticleInternational journal of environmental research and public health2021
"It's What I Have, It's Not Who I Am": A Qualitative Study of Social Support in Education/Employment Settings and Transition Readiness of Young Adults with End-Stage Renal Disease.
Article in International journal of environmental research and public health, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers, 1 of them a synthesis that pooled it.
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Who cites it
6 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Social Isolation and Loneliness in People Living With Chronic Kidney Disease and Kidney Failure: A Mixed Method Systematic Review.Journal of renal care · 2026Pooled it
- Perspectives on Peritoneal Dialysis and Kidney Transplant in Adolescents and Young Adults: A Qualitative Study.Kidney medicine · 2026Article
- Influencing factors and coping strategies of self-management ability in patients undergoing continuous ambulatory peritoneal dialysis.Revista da Escola de Enfermagem da U S P · 2026Article
- 10 tips for a transition clinic from paediatric to adult nephrology.Clinical kidney journal · 2026Review
- Education and employment outcomes in pediatric chronic kidney disease.Pediatric nephrology (Berlin, Germany) · 2024Review
- The Strategies Used to Balance Health and Work Across the Solid Organ Transplantation Trajectory.Progress in transplantation (Aliso Viejo, Calif.) · 2024Article
Corrections and comments
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Authors and funding
4 authors.
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Abstract
This study investigated the role of social support in self-management within education/employment settings for young adults (YA) with end-stage renal disease (ESRD) as well as barriers and facilitators to social support formation. Nineteen YA with ESRD (mean age 24 years, 10 males, 9 African American) recruited from a pediatric nephrology clinic in the Southeast United States completed in-person semi-structured interviews. The grounded theory was used to analyze transcribed interviews to identify emergent themes. Absences hindered participants' school/work attendance and performance. Social support was necessary for illness management and success in academic/vocational settings. Facilitators to establishing support included self-awareness and view of disclosure as a way to access accommodations. Barriers included fear of judgment, job loss, and the belief that the condition was too personal to disclose. Educators and employers must acknowledge the needs of YA with ESRD to promote development and educational/vocational success. Fear of disclosure and poor disease self-management interferes with accessing social support. Communication skills and autonomy in patients' medical and personal lives can promote success in education and employment settings.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.