Evidence map›Paper›PMID 34205109›Full record

ArticleChildren (Basel, Switzerland)2021

Leveraging Grief: Involving Bereaved Parents in Pediatric Palliative Oncology Program Planning and Development.

Holly L Spraker-Perlman, Taylor Aglio, Erica C Kaye, Deena Levine, Brittany Barnett, Kathryn Berry Carter, Michael McNeil, Lisa Clark, Justin N Baker, The St Jude Quality Of Life Steering Council

Open access · goldAbstract read
In one paragraph

Article in Children (Basel, Switzerland), 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
4.7field-weighted citation impact, top 6% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 15 citations in OpenAlex.

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  6. Medical experts and trusted confidants: parent perceptions of the clinician-parent relationship in childhood cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors at 1 institution in 1 country.

Holly L Spraker-PerlmanDivision of Quality of Life and Palliative Care, Department of Oncology, St. Jude Children's Research Hospital, Memphis, TN 38105, USA.ORCID 0000-0001-7070-3666
Taylor AglioDepartment of Global Medicine, St. Jude Children's Research Hospital, Memphis, TN 38105, USA.ORCID 0000-0002-5977-9421
Erica C KayeDivision of Quality of Life and Palliative Care, Department of Oncology, St. Jude Children's Research Hospital, Memphis, TN 38105, USA.
Deena LevineDivision of Quality of Life and Palliative Care, Department of Oncology, St. Jude Children's Research Hospital, Memphis, TN 38105, USA.
Brittany BarnettFamily, Guest and Volunteer Services Program, St. Jude Children's Research Hospital, Memphis, TN 38105, USA.
Kathryn Berry CarterFamily, Guest and Volunteer Services Program, St. Jude Children's Research Hospital, Memphis, TN 38105, USA.ORCID 0000-0001-7462-0796
Michael McNeilDepartment of Global Medicine, St. Jude Children's Research Hospital, Memphis, TN 38105, USA.ORCID 0000-0001-8817-1995
Lisa ClarkDivision of Quality of Life and Palliative Care, Department of Oncology, St. Jude Children's Research Hospital, Memphis, TN 38105, USA.
Justin N BakerDivision of Quality of Life and Palliative Care, Department of Oncology, St. Jude Children's Research Hospital, Memphis, TN 38105, USA.
The St Jude Quality Of Life Steering Council
St. Jude Children's Research Hospital · US

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

As pediatric palliative care (PPC) became a recognized medical specialty, our developing clinical PPC team longitudinally partnered with bereaved parents to understand the care that their children received as they transitioned towards end of life. Families developed Eight Priorities, shared within, to improve care for children with a poor chance of survival based on their experience of losing a child to cancer. In this paper, we delineate the top eight PPC needs from a parent perspective to offer multi-layered, individually tailored resources for patients and families. One of these Eight Priorities noted that bereavement care for the remaining family members is vital for healing after the death of a child to promote meaning making and resilience in bereaved families. Here, we outline the creation of a bereaved parent-designed bereavement support program as one example of how we have partnered with parents to fulfill their Eight Priorities for quality care.

Indexed as

bereaved parentsbereavement carepediatric oncology bereavementpediatric palliative care

Identifiers

PMID34205109
PMCPMC8226717
OpenAlexW3170500442

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.