Evidence map›Paper›PMID 34198319›Full record

ArticleEuropean heart journal2021

Transition to adulthood and transfer to adult care of adolescents with congenital heart disease: a global consensus statement of the ESC Association of Cardiovascular Nursing and Allied Professions (ACNAP), the ESC Working Group on Adult Congenital Heart Disease (WG ACHD), the Association for European Paediatric and Congenital Cardiology (AEPC), the Pan-African Society of Cardiology (PASCAR), the Asia-Pacific Pediatric Cardiac Society (APPCS), the Inter-American Society of Cardiology (IASC), the Cardiac Society of Australia and New Zealand (CSANZ), the International Society for Adult Congenital Heart Disease (ISACHD), the World Heart Federation (WHF), the European Congenital Heart Disease Organisation (ECHDO), and the Global Alliance for Rheumatic and Congenital Hearts (Global ARCH).

Philip Moons, Ewa-Lena Bratt, Julie De Backer, Eva Goossens, Tim Hornung, Oktay Tutarel, Liesl Zühlke, John Jairo Araujo, Edward Callus, Harald Gabriel and 5 more

Abstract readConsensus Statement
PubMed Full text at PMC Publisher
In one paragraph

Article in European heart journal, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 65 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
65citing papers in PubMed, 3 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

65 citing papers in PubMed, 3 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
  3. Pooled it
  4. Trial
  5. Trial
  6. Article
  7. Review
  8. Article
  9. Article
  10. Article
  11. Article
  12. Article
  13. Article
  14. Article
  15. Article
  16. Article
  17. Article
  18. Article
  19. Article
  20. Article

5 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors.

Philip MoonsKU Leuven Department of Public Health and Primary Care, KU Leuven, Kapucijnenvoer 35, Box 7001, B-3000 Leuven, Belgium.
Ewa-Lena BrattInstitute of Health and Care Sciences, University of Gothenburg, Sweden.
Julie De BackerDepartment of Cardiology and Center for Medical Genetics, Ghent University Hospital, Belgium.
Eva GoossensKU Leuven Department of Public Health and Primary Care, KU Leuven, Kapucijnenvoer 35, Box 7001, B-3000 Leuven, Belgium.
Tim HornungPaediatric and Congenital Cardiology Service, Starship Children's Hospital, Auckland, New Zealand.
Oktay TutarelESC Working Group on Adult Congenital Heart Disease (WG ACHD).
Liesl ZühlkeDepartment of Paediatrics and Child Health, University of Cape Town, South Africa.
John Jairo AraujoDepartment of Pediatric and Adult Congenital Heart Disease, Somer Incare Cardiovascular Center, Medellin, Colombia.
Edward CallusClinical Psychology Service, IRCCS Policlinico San Donato, Milan, Italy.
Harald GabrielESC Working Group on Adult Congenital Heart Disease (WG ACHD).
Nauman ShahidGlobal Alliance for Rheumatic and Congenital Hearts (Global ARCH).
Karen SliwaHatter Institute for Cardiovascular Research in Africa, University of Cape Town, South Africa.
Amy VerstappenGlobal Alliance for Rheumatic and Congenital Hearts (Global ARCH).
Hsiao-Ling YangSchool of Nursing, College of Medicine, National Taiwan University, Taipei, Taiwan.
Corina ThometKU Leuven Department of Public Health and Primary Care, KU Leuven, Kapucijnenvoer 35, Box 7001, B-3000 Leuven, Belgium.

Funding

Medical Research Council MR/S005242/1
6 · The paper itself

Abstract

The vast majority of children with congenital heart disease (CHD) in high-income countries survive into adulthood. Further, paediatric cardiac services have expanded in middle-income countries. Both evolutions have resulted in an increasing number of CHD survivors. Expert care across the life span is necessitated. In adolescence, patients transition from being a dependent child to an independent adult. They are also advised to transfer from paediatrics to adult care. There is no universal consensus regarding how transitional care should be provided and how the transfer should be organized. This is even more challenging in countries with low resources. This consensus document describes issues and practices of transition and transfer of adolescents with CHD, accounting for different possibilities in high-, middle-, and low-income countries. Transitional care ought to be provided to all adolescents with CHD, taking into consideration the available resources. When reaching adulthood, patients ought to be transferred to adult care facilities/providers capable of managing their needs, and systems have to be in place to make sure that continuity of high-quality care is ensured after leaving paediatric cardiology.

Indexed as

CardiologyCardiovascular NursingHeart Defects, CongenitalPediatricsTransition to Adult CareAdolescentAdultAsiaAustraliaChildConsensusHumansNew ZealandUnited StatesAdolescenceContinuity of careEmerging adulthoodHeart defect, congenitalTransferTransition

Identifiers

PMID34198319
PMCPMC8560210

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.