ArticleJournal of clinical and translational science2021
It should not require a pandemic to make community engagement in research leadership essential, not optional.
Article in Journal of clinical and translational science, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
20 citing papers in PubMed.
- Short-Term Effects of a Caregiver-Mediated Intervention for Preschoolers at Risk for Developmental Language Disorder: A Randomized Controlled Trial.Journal of speech, language, and hearing research : JSLHR · 2026Trial
- Uncovering systemic barriers related to equity, diversity and inclusion in child health research: a scoping review addressing marginalised communities.BMJ global health · 2025Article
- Building and Sustaining Community Engagement to Advance School Behavioral Health Research.Behavioral sciences (Basel, Switzerland) · 2025Article
- Developing a stakeholder-informed social responsibility model for translational science.PloS one · 2025Article
- Researcher and community partner perspectives on community-engaged research during the COVID-19 pandemic.Journal of clinical and translational science · 2025Article
- The importance of the integration of community engagement with biomedical informatics when assessing social determinants of health.Journal of clinical and translational science · 2025Article
- Characteristics of persons with varying vaccination personas: data from the CDC-funded PANDEMIC project.Discover public health · 2025Article
- Patient and community centered approaches to sepsis among birthing people.Seminars in perinatology · 2024Review
- Updating and evaluating a research best practices training course for social and behavioral research professionals.Journal of clinical and translational science · 2024Article
- Addressing Tobacco Use in Underserved Communities Outside of Primary Care: The Need to Tailor Tobacco Cessation Training for Community Health Workers.International journal of environmental research and public health · 2023Article
- Anti-racist strategies for clinical and translational research: Design, implementation, and lessons learned from a new course.Journal of clinical and translational science · 2023Article
- Community engagement: health research through informing, consultation, involving and empowerment in Ingwavuma community.Frontiers in public health · 2023Article
- Adaptive capacity and preparedness of Clinical and Translational Science Award Program hubs: Overview of an environmental scan.Journal of clinical and translational science · 2023Review
- Engaging community in the translational process: Environmental scan of adaptive capacity and preparedness of Clinical and Translational Science Award Program hubs.Journal of clinical and translational science · 2023Review
- Virtual recruitment and participant engagement for substance use research during a pandemic.Current opinion in psychiatry · 2022Review
- Racial and Ethnic Diversity in SARS-CoV-2 Vaccine Clinical Trials Conducted in the United States.Vaccines · 2022Review
- Reviewing fair subject selection considerations for the unique case of post sequelae COVID-19 translational studies.Journal of clinical and translational science · 2022Review
- Article
- Addressing the challenges of conducting community-engaged research during COVID-19: Rapid development and evaluation of a COVID-19 Research Patient and Community Advisory Board (PCAB).Journal of clinical and translational science · 2022Article
- Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
11 authors.
Funding
Abstract
Efforts to move community engagement in research from marginalized to mainstream include the NIH requiring community engagement programs in all Clinical and Translational Science Awards (CTSAs). However, the COVID-19 pandemic has exposed how little these efforts have changed the dominant culture of clinical research. When faced with the urgent need to generate knowledge about prevention and treatment of the novel coronavirus, researchers largely neglected to involve community stakeholders early in the research process. This failure cannot be divorced from the broader context of systemic racism in the US that has contributed to Black, Indigenous, and People of Color (BIPOC) communities bearing a disproportionate toll from COVID-19, being underrepresented in COVID-19 clinical trials, and expressing greater hesitancy about COVID-19 vaccination. We call on research funders and research institutions to take decisive action to make community engagement obligatory, not optional, in all clinical and translational research and to center BIPOC communities in this process. Recommended actions include funding agencies requiring all research proposals involving human participants to include a community engagement plan, providing adequate funding to support ongoing community engagement, including community stakeholders in agency governance and proposal reviews, promoting racial and ethnic diversity in the research workforce, and making a course in community engaged research a requirement for Masters of Clinical Research curricula.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.