ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2021
Relationships between health literacy, having a cancer care coordinator, and long-term health-related quality of life among cancer survivors.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
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Who cites it
8 citing papers in PubMed, 9 citations in OpenAlex.
- Feasibility of delivering survivorship care via lay health educators: A pilot randomized controlled trial among rural cancer survivors.The Journal of rural health : official journal of the American Rural Health Association and the National Rural Health Care Association · 2023Trial
- Self-management of reflux symptoms after esophagectomy in China: A qualitative study.Asia-Pacific journal of oncology nursing · 2026Article
- Exploring health system factors related to the quality of life of people with (a history of) cancer: a rapid review.Health and quality of life outcomes · 2026Review
- A Breast cAncer Survivorship Inter-Professional Community (BASIC) Shared Care Model to Promote Healthy Behaviors in Singapore: A Pilot Randomized Controlled Trial.International journal of behavioral medicine · 2025Article
- Integrated care among patients with kidney or urinary bladder cancer: An NCI patterns-of-care analysis.Urologic oncology · 2025Article
- Inequalities in patients' experiences with cancer care: the role of economic and health literacy determinants.BMC health services research · 2024Article
- Article
- Cancer as a Chronic Illness in Colombia: A Normative Consensus Approach to Improving Healthcare Services for those Living with and beyond Cancer and Its Treatment.Healthcare (Basel, Switzerland) · 2021Article
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Authors and funding
7 authors at 1 institution in 1 country.
Funding
Abstract
purposeCare coordination is a strategy to reduce healthcare navigation challenges for cancer patients. The objectives of this study were to assess the association between having a cancer care coordinator (CCC) and long-term health-related quality of life (HRQoL), and to evaluate whether this association differed by level of health literacy.
methodsA population-based sample of survivors diagnosed with breast, prostate, or colorectal cancer in 2015 from the Iowa Cancer Registry participated in an online survey conducted in 2017-2018 (N = 368). Chi-squared tests and logistic regression were used to model the association between patient characteristics and having a cancer care coordinator. Linear regression was used to model the association between patient perception of having a cancer care coordinator and post-treatment physical or mental HRQoL by differing levels of health literacy while controlling for sociodemographic and clinical factors.
resultsMost survivors (81%) reported having one healthcare professional who coordinated their cancer care. Overall, patient perception of having a coordinator was not significantly associated with physical HRQoL (p = 0.118). However, participants with low health literacy (21%) who had a coordinator had significantly higher physical HRQoL scores compared to those who did not (adjusted mean difference 5.2, p = 0.010), while not so for medium (29%) or high (51%) health literacy (p = 0.227, and p = 0.850, respectively; test for interaction p = 0.001). Mental HRQoL was not associated with having a coordinator in our analyses.
conclusionFindings suggest that care coordinators improved post-treatment physical HRQoL, particularly for participants with low health literacy. Care coordinators may be beneficial to the most vulnerable patients struggling to navigate the complex healthcare system during cancer treatment. Future research should focus on the mechanisms by which care coordination may affect post-treatment HRQoL.
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