ArticleBMC health services research2021
Preparing for partnerships in cancer care: an explorative analysis of the role of family-based caregivers.
Article in BMC health services research, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 28 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
28 citing papers in PubMed, 55 citations in OpenAlex.
- Exploring the determinants of health literacy and its effects on health-related outcomes in family caregivers of patients with cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Trial
- Translating Evidence-Based Self-Management Interventions Using a Stepped-Care Approach for Patients With Cancer and Their Caregivers: A Pilot Sequential Multiple Assignment Randomized Trial Design.Psycho-oncology · 2025Trial
- Needs of Rural Caregivers of Patients With Cancer: A Scoping Review of Evidence From North America, Europe, and Australia.Psycho-oncology · 2026Article
- Access to Supportive Care Among Australian Cancer Carers: Experiences of Priority Populations.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Patients' Voices of Care Encounters and Organisational Influences on Existential Suffering in Cancer Care: A Qualitative Study.Scandinavian journal of caring sciences · 2026Article
- Caregivers as essential members of healthcare teams: lessons learned from enforcement of the "no visitors" policy during the COVID-19 pandemic in Ontario, Canada.BMC health services research · 2026Article
- Meaning-Centered Psychotherapy for Cancer Caregivers: Study protocol of a randomized controlled trial.Trials · 2026Article
- Meaning-Centered Psychotherapy for Cancer Caregivers Study protocol of a randomized controlled trial.Research square · 2026Article
- "The Day He Fell Ill, We Turned on a Switch…Now, Everything Is My Responsibility": Scoping Review of Qualitative Studies Among Partners of Patients with Cancer.Current oncology (Toronto, Ont.) · 2026Review
- Article
- Supportive care needs and assessment tools for family caregivers of Indigenous people with cancer: a narrative review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Review
- Patient and Caregiver Experiences of CAR T Cell Therapy for Blood Cancer in the UK: A Qualitative Study.The patient · 2025Article
- Early and late code status documentation in cancer patients managed by a dedicated supportive care team.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- The caregiver's journey: A qualitative study on the integration of family caregivers of advanced cancer patients in outpatient settings in Germany.Palliative & supportive care · 2025Article
- What can we learn from the evidence of psychosocial support for carers of people with cancer and how do we advance our efforts? A meta-review study.Journal of cancer survivorship : research and practice · 2025Review
- Barriers to accessing formal cancer care from the perspective of informal caregivers: a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Article
- Adapting a Preparatory Skills-Building Programme for Carers of People With Cancer Through Co-Design: The iCanSupport Project.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Supporting Carers: Study Protocol of a Meta-Review of Psychosocial Interventions for Carers of People With Cancer.JMIR research protocols · 2024Article
- The role of social support among caregivers of people with cancer from Chinese and Arabic communities: a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundFamily-based 'informal' caregivers are critical to enable sustainable cancer care that produces optimal health outcomes but also gives rise to psychological burdens on caregivers. Evidence of psychosocial support for caregivers does not currently address the impacts of their role in providing clinical and health-related care for their loved ones. The present study sought to address this gap including with those from priority populations.
methodsQualitative data was collected using focus group and interview methods. We purposively sampled caregivers identified as having a high burden of responsibility for providing clinical care including those from ethnic minority backgrounds, parental caregivers and those living rurally. Transcripts were subject to thematic analysis utilising a team-based approach.
resultsFamily-based caregivers included spouses (11), parents (7), children (1), siblings (1). Ten participants were from ethnic minority backgrounds and five participants were from regional or rural locations. Four resulting inter-related themes were; 1) Dual burden of providing clinical care and managing personal emotional distress; 2) Navigating healthcare partnership dynamics; 3) Developing a caregiving skillset, and 4) Unique supportive needs and barriers to access. These data provide evidence of the unique challenge of providing clinical care as part of family-based caregiving for a loved one with cancer, and the absence of support for caregivers to take up this role.
conclusionOur findings highlight the substantial contribution of family-based caregivers to the provision of cancer care in contemporary health systems. Inadequate support for caregivers is apparent with regard to their role in providing clinical aspects of care such as medication administration and management. Support programs to prepare caregivers to provide clinical care while building capacity to manage their stressors and emotions through this challenging period may be valuable towards sustainable, person-centred care.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.