ArticlePain medicine (Malden, Mass.)2021
Experiences of Patient-Led Chronic Pain Peer Support Groups After Pain Management Programs: A Qualitative Study.
Article in Pain medicine (Malden, Mass.), 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 1 of them a synthesis that pooled it.
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The trial behind it
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Who cites it
18 citing papers in PubMed, 1 synthesis or guideline pooled it, 31 citations in OpenAlex.
- Pooled it
- Multi-disciplinary community-based group intervention for fibromyalgia: a pilot randomized controlled trial.Rheumatology international · 2023Trial
- Chronic Pain in Community: A Mixed Methods Evaluation of the Vet-to-Vet Program.The Journal of rural health : official journal of the American Rural Health Association and the National Rural Health Care Association · 2026Article
- Impact of fibromyalgia syndrome diagnosis and treatment experiences on health information-seeking behaviour: A cross-sectional online survey.British journal of pain · 2026Article
- Pain Retrained: Participant Perspectives of an Online, Interdisciplinary Chronic Pain Education Programme.European journal of pain (London, England) · 2026Article
- Light at the end of the tunnel: design, implementation and outcomes of a pelvic pain management programme.Facts, views & vision in ObGyn · 2025Article
- A True Community: The Vet-to-Vet Program for Chronic Pain.Federal practitioner : for the health care professionals of the VA, DoD, and PHS · 2025Article
- Sexual health and chronic low back pain: A qualitative study.North American Spine Society journal · 2025Article
- Developing and Piloting a Dedicated Support Group for Young Adults With Multiple Sclerosis.International journal of MS care · 2025Article
- Exploring Barriers and Facilitators to Self-Management for Patients With Persistent Musculoskeletal Conditions Following NHS-Led Hydrotherapy: A Service Evaluation.Musculoskeletal care · 2025Article
- Assessing a peer-led pain and wellness self-management program with older adults.Innovation in aging · 2025Article
- Application of mobile internet management in the continuing care of patients after radical prostatectomy.Scientific reports · 2024Article
- Peer Support for Chronic Pain in Online Health Communities: Quantitative Study on the Dynamics of Social Interactions in a Chronic Pain Forum.Journal of medical Internet research · 2024Article
- Perspectives on Creating a Chronic Pain Support Line in Portugal: Results of a Focus Group Study among Patients and Healthcare Professionals.Journal of clinical medicine · 2024Article
- Experience of compassion-based practice in mindfulness for health for individuals with persistent pain.British journal of pain · 2024Article
- 'I can feel myself coming out of the rut': a brief intervention for supporting behaviour change is acceptable to patients with chronic musculoskeletal conditions.BMC musculoskeletal disorders · 2023Article
- Supervised interprofessional student pain clinic program - efficacy with the utilization of zoom.Frontiers in pain research (Lausanne, Switzerland) · 2023Article
- Remotely delivered cognitive-behavioural and personalized exercise interventions to lessen the impact of fatigue: a qualitative evaluation.Rheumatology advances in practice · 2022Article
Corrections and comments
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Authors and funding
9 authors at 2 institutions in 1 country.
Funding
Abstract
objectiveA qualitative study of patients' experiences and the impacts of peer support groups that patients maintained after UK NHS group pain management programs (PMPs).
designLong-term impacts of group PMPs remain unclear, with indications that positive effects can fade. We evaluated a model of continued peer support, co-produced by patients and clinicians, to maintain the therapeutic impact of PMP groups. A protocol was implemented that encouraged patients to continue to meet in their established PMP group for patient-led peer support (without clinical input) after PMPs finished. Peer support aimed to consolidate self-management, and advance social life recovery. We examined the impacts that groups had on attendees, and why some dropped out.
methodsSemi-structured interviews with 38 patients and 7 clinicians, analyzed thematically.
resultsFriendship bonds and mutual understandings of effective ways of coping with pain encouraged participants to maintain recovery following PMPs. After PMP professional involvement has ended, these meetings enabled patients to develop greater agency from the shared sense of helping bring about new achievements or averting setbacks. Peer support extended the understanding of what is possible when living with pain. However, continuing meetings were not right for all. Reasons for not attending included lack of connection with peers.
conclusionsCo-produced peer support groups after PMPs can be a low-cost, effective social intervention, providing emotional, practical and social benefits, with improved self-management skills, stronger social connections and some reduced use of health services. Project resources for developing peer support meetings after PMPs are freely available online.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.