Factors Impacting the Decision of an Individual With Lynch Syndrome to Terminate a Health Care Provider Relationship.

Erin M Broughel, Kelsey Hennig, Rebecca Chu, Wendy M Parker, Lisa Campo-Engelstein, Allison M Burton-Chase

Abstract read

In one paragraph

Article in Journal of patient experience, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it

0cells of the map it votes in

0citing papers in PubMed

–field-weighted citation impact

1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Erin M BroughelDepartment of Population Health Sciences, Albany College of Pharmacy and Health Sciences, Albany, NY, USA.

Kelsey HennigDepartment of Pharmacy Practice, Binghamton University, Binghamton, NY, USA.ORCID https://orcid.org/0000-0001-7979-9959

Rebecca ChuGeriatric Research, Education, and Clinical Center, James J. Peters Veteran Affairs Medical Center, Bronx, NY, USA.

Wendy M ParkerDepartment of Population Health Sciences, Albany College of Pharmacy and Health Sciences, Albany, NY, USA.ORCID https://orcid.org/0000-0001-6363-5634

Lisa Campo-EngelsteinDepartment of Preventive Medicine and Population Health, Institute for the Medical Humanities, University of Texas Medical Branch, Galveston, TX, USA.

Allison M Burton-ChaseDepartment of Population Health Sciences, Albany College of Pharmacy and Health Sciences, Albany, NY, USA.ORCID https://orcid.org/0000-0002-5141-6095

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Lynch syndrome (LS) is a genetic cancer syndrome that puts affected individuals at a significantly higher risk of developing multiple cancers. Participants (n = 57) were recruited through social media. Data were collected through online surveys and phone interviews; the interview data (n = 55) were analyzed to identify provider terminations and the factors that motivated these decisions. Results indicate that individuals with LS terminated their patient-provider relationships due to lack of provider LS knowledge, poor interactions, or a combination of both factors. Findings from this study suggest a need for better interactions between LS patients and providers and increased knowledge of LS-specific care.

Indexed as

Lynch syndromeLynch syndrome knowledgepatient–provider communicationpatient–provider relationshipstermination of health care provider relationships

Identifiers

PMID34179439

DOI10.1177/23743735211008755

PMCPMC8205383

What OpenQuestion holds

Textmetadata

LicenceCC BY-NC

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.