ArticleJournal of pain and symptom management2022
Transitioning to Remote Recruitment and Intervention: A Tale of Two Palliative Care Research Studies Enrolling Underserved Populations During COVID-19.
Article in Journal of pain and symptom management, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
21 citing papers in PubMed.
- Evaluation design of the patient-centred pathways of early palliative care, supportive ecosystems and appraisal standard (InAdvance): a randomised controlled trial.BMC geriatrics · 2022Trial
- Engagement begins at recruitment: Comparing videoconference verification to passive online screening for participant retention and study engagement.Behavior research methods · 2026Article
- Article
- Mapping study on AI-based technologies in palliative care - a scoping study.BMC palliative care · 2025Article
- Delivering home-based palliative care during COVID-19 in Taiwan: a qualitative study with interdisciplinary team members.BMC palliative care · 2025Article
- Breast cancer beliefs and screening behaviors among South Asian immigrant women living in the United States.BMC women's health · 2025Article
- Recruitment Challenges and Strategies in a Technology-Based Intervention for Dementia Caregivers: Descriptive Study.JMIR formative research · 2025Article
- Aging, Race, and Health Disparities: Recommendations From the Research Centers Collaborative Network.The journals of gerontology. Series B, Psychological sciences and social sciences · 2024Article
- Characterizing participants who respond to text, email, phone calls, or postcards in a SARS-CoV-2 prevalence study.BMC public health · 2024Article
- "A Judgment-Free Zone": Adaptation and Pilot Study of a Virtual Wellness Group for African American Mothers with Young Children.International journal of environmental research and public health · 2024Article
- Resource management and capacity planning for clinical trial sites.Journal of clinical and translational research · 2024Article
- Impact of financial compensation on enrollment and participation in a remote, mobile-app based research study.Journal of clinical and translational science · 2024Article
- The Effectiveness and Feasibility of Palliative Care via Video Telemedicine for Patients with Advanced Cancer: A Nonrandomized Prospective Clinical Trial Comparing Combination of Telemedicine and in-Person Care with in-Person Care Alone.Palliative medicine reports · 2024Article
- Evaluation of a French adaptation of a community-based advance serious illness planning decision aid.PEC innovation · 2023Article
- Neuropsychiatric symptoms in people living with dementia receiving home health services.Journal of the American Geriatrics Society · 2023Article
- Article
- Home Palliative Care during the COVID-19 Pandemic: A Scoping Review.The American journal of hospice & palliative care · 2023Article
- Article
- Pregnancy-Specific Stress during the First Lockdown of the COVID-19 Pandemic: Assessing Face-to-Face versus Online Recruitment.International journal of environmental research and public health · 2022Article
- Telemedicine and Its Past, Present, and Future Roles in Providing Palliative Care to Advanced Cancer Patients.Cancers · 2022Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
Abstract
contextDuring the COVID-19 pandemic, community-based research studies experienced prolonged shutdowns unless able to pivot to remote study procedures.
objectivesTo describe the revision of two National Institutes of Health funded community-based palliative-focused clinical trials serving underserved populations to accommodate remote subject enrollment and examine its impact.
methodsTransitioning to remote processes required multiple protocol and procedural changes including: altering informed consent processes; reducing the number of surveys administered; adding internet access as an inclusion criterion. To understand technological challenges, a screening tool was developed for one study to identify potentially eligible subjects' technology abilities and accessibility.
resultsSubjects' limited access to the internet and internet-enabled devices and discomfort with technology led to changes in recruitment patterns. Lack of familiarity with technology increased the amount of time it took research team members and subjects to connect remotely. Patients with significant cognitive and/or sensory deficits were at higher risk of experiencing fatigue during remote study visits leading to streamlining of data collection. A researcher-developed technology screening tool found that potential subjects were not comfortable with videoconferencing through Zoom expressing a preference for phone visits. Reduced travel time made scheduling remote study visits more efficient.
conclusionFuture community- and home-based palliative care trials must consider the best way to utilize remote recruitment, enrollment, and data collection processes to increase efficiency and reduce costs. Researchers should consider technology accessibility and train staff to ensure the greatest possible opportunity to recruit underserved populations who have traditionally been underrepresented in research studies.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.