Evidence map›Paper›PMID 34158022›Full record

ArticleBMC palliative care2021

Adapting ENABLE for patients with advanced cancer and their family caregivers in Singapore: a qualitative formative evaluation.

Grace Meijuan Yang, J Nicholas Dionne-Odom, Yi Han Foo, Ariel Hui Mei Chung, Nur Haidah Ahmad Kamal, Laurence Tan, Chou Chuen Yu, Le Mai Khanh, Audrey Rui Xuan Koh, Irene Teo and 2 more

Abstract read
In one paragraph

Article in BMC palliative care, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
  3. Article
  4. From Willingness to Readiness: Caregiver Activation for Cancer Care in Singapore.International journal of environmental research and public health · 2026
    Article
  5. Article
  6. Article
  7. Article
  8. Article
  9. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Grace Meijuan YangNational Cancer Centre Singapore, 11 Hospital Crescent, Singapore, 169610, Singapore. Grace.yang.m.j@singhealth.com.sg.
J Nicholas Dionne-OdomThe University of Alabama At Birmingham, Birmingham, USA.
Yi Han FooNational University of Singapore, Singapore, Singapore.
Ariel Hui Mei ChungNational University of Singapore, Singapore, Singapore.
Nur Haidah Ahmad KamalNational University of Singapore, Singapore, Singapore.
Laurence TanKhoo Teck Puat Hospital, Singapore, Singapore.
Chou Chuen YuGeriatric Education and Research Institute, Singapore, Singapore.
Le Mai KhanhGeriatric Education and Research Institute, Singapore, Singapore.
Audrey Rui Xuan KohNational Cancer Centre Singapore, 11 Hospital Crescent, Singapore, 169610, Singapore.
Irene TeoDuke-NUS Medical School, Lien Centre for Palliative Care, Singapore, Singapore.
Sungwon YoonDuke-NUS Medical School, Singapore, Singapore.
Marie BakitasDuke-NUS Medical School, Singapore, Singapore.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundENABLE (Educate, Nurture, Advise, Before Life Ends) is a nurse coach-led, early palliative care model for patients with advanced cancer and their family caregivers. Content covered includes problem-solving, advance care planning, symptom management and self-care. The aim was to evaluate the cultural acceptability of ENABLE among patients with advanced cancer and their caregivers in Singapore and identify modifications for an adapted ENABLE-SG model.

methodsQualitative formative evaluation with a thematic analysis approach in two hospitals in Singapore, involving patients (n = 10), family caregivers (n = 11) and healthcare professionals (n = 10) who care for patients with advanced cancer. Semi-structured interviews were conducted to explore (i) the main needs and challenges facing individuals with advanced cancer and their family caregivers; (ii) patient involvement in healthcare decision making; and (iii) content and delivery of ENABLE.

resultsWhile physical needs were largely well met, participants expressed that psychosocial care was delivered too late in the illness trajectory. Healthcare decision making approaches varied from a patient-centred shared decision-making model to a family-centred model where patients may not know their cancer diagnosis and prognosis. The content was considered to be relevant, comprehensive and practical; financial assistance, adjustment to body image, and evaluation of complementary therapy were also recommended. Face-to-face rather than telephone sessions were preferred to facilitate rapport building.

conclusionsENABLE was broadly acceptable with some modifications, including adjusting the content to ensure it can be delivered even if the patient is not fully aware of cancer diagnosis and delivering the first session face-to-face with flexibility for subsequent sessions.

Indexed as

Hospice and Palliative Care NursingNeoplasmsCaregiversHumansPalliative CareQualitative ResearchSingaporeCaregiversCulturally competent carePalliative CarePatient participationQualitative research

Identifiers

PMID34158022
PMCPMC8218975

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.