ArticleJCO global oncology2021
Gaps in Care and Support for Patients With Advanced Breast Cancer: A Report From the Advanced Breast Cancer Global Alliance.
Article in JCO global oncology, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers.
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Who cites it
20 citing papers in PubMed.
- Which quality of life issues are important to patients with metastatic breast cancer: Phase 1 and 2 development of European Organisation for Research and Treatment of Cancer metastatic breast cancer module (EORTC QLQ-MBR).Breast (Edinburgh, Scotland) · 2026Article
- Evaluation of a novel communication workshop for healthcare professionals working with metastatic breast cancer patients.Breast (Edinburgh, Scotland) · 2026Article
- Biomarker recall and understanding among people living with metastatic breast cancer - results from an international patient survey.Breast (Edinburgh, Scotland) · 2026Article
- Finding my tribe: a qualitative interview study of how people living with metastatic breast cancer perceive support groups.Journal of cancer survivorship : research and practice · 2026Article
- The use of social media interventions for breast cancer survivors: a narrative review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Review
- Development and validation of CORe-MBC: a pragmatic measure of participatory care for adults with metastatic breast cancer.Frontiers in oncology · 2026Article
- Improving communication between healthcare professionals and patients living with advanced breast cancer: a global expert review and call-to-action for 2025-2035 (Goal 5).Breast (Edinburgh, Scotland) · 2025Review
- Meeting the informational needs of people with advanced breast cancer: a global expert review and call-to-action for 2025-2035 (Goal 6).Breast (Edinburgh, Scotland) · 2025Review
- Collaborative Funding Model to Improve Quality of Care for Metastatic Breast Cancer in Europe.Current oncology (Toronto, Ont.) · 2025Article
- Time and location of specialty palliative care for women dying with metastatic breast cancer.Breast cancer research and treatment · 2025Article
- Regional differences in experiences of patients with metastatic breast cancer in the Republic of Ireland and Northern Ireland: a comparative analysis (CTRIAL-IE 23-05).BMJ open quality · 2025Article
- Qualitative Findings From a Survey Measuring Informational Needs and Quality of Life of Women Living With Metastatic Breast Cancer.Psycho-oncology · 2025Article
- Global patterns and trends in breast cancer incidence and mortality across 185 countries.Nature medicine · 2025Article
- Underserved Patient Populations With Metastatic Breast Cancer: A Review of Progress and Remaining Challenges.The breast journal · 2025Review
- What are the needs in oral antitumor therapy? An analysis of patients' and practitioners' preferences.Frontiers in oncology · 2024Article
- Re-imagining metastatic breast cancer care delivery: a patient-partnered qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023Article
- Living with metastatic breast cancer (LIMBER): experiences, quality of life, gaps in information, care and support of patients in the UK.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023Article
- International development of a patient-centered core outcome set for assessing health-related quality of life in metastatic breast cancer patients.Breast cancer research and treatment · 2023Article
- Decoding TROP2 in breast cancer: significance, clinical implications, and therapeutic advancements.Frontiers in oncology · 2023Review
- Exploring access to care from the perspective of patients with breast cancer: A qualitative study.Cancer medicine · 2022Article
Corrections and comments
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Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeAlthough new therapeutic options continue to improve disease-related outcomes in advanced breast cancer (ABC), enhanced focus is needed to improve quality of life for patients currently living with ABC.
methodsIn November 2019, a multidisciplinary workshop to explore patient perceptions of their information and support needs was held at the ABC Global Alliance Annual Meeting in Lisbon, Portugal. Ninety-two attendees from 27 countries participated in the workshop.
resultsSeveral key unmet needs were identified and discussed in the workshop, including the following: (1) Significant patient knowledge gaps exist related to the diagnosis and management of ABC, and the availability of patient-focused information to support these gaps in knowledge remains limited. (2) The development of meaningful relationships between patients and health care professionals, and the role of patients in decision making, is often overlooked for patients with ABC. (3) Multidisciplinary care approaches are crucial for patients with ABC; however, these often lack effective coordination. (4) Access to clinical trials for ABC also remains limited. (5) Caregivers, friends, and family members do not receive sufficient guidance to support patients with ABC and manage their own well-being.
conclusionThe variety of unmet needs explored in the workshop demonstrates that patients with ABC still face considerable challenges related to quality of care and support, which will not be resolved until tangible action is taken. Issues highlighted in the workshop should be prioritized by working groups to shape the development of community-based solutions. There is a need for the global community to act proactively to maximize awareness of these ongoing unmet needs and existing resources, while socializing and building new initiatives and resources that will help to close these gaps for patients.
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