Evidence map›Paper›PMID 34156343›Full record

ArticleJMIR pediatrics and parenting2021

Self-Care Needs and Technology Preferences Among Parents in Marginalized Communities: Participatory Design Study.

Weichao Yuwen, Miriana Duran, Minghui Tan, Teresa M Ward, Sunny Chieh Cheng, Magaly Ramirez

Abstract read
In one paragraph

Article in JMIR pediatrics and parenting, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Participatory research with carers: A systematic review and narrative synthesis.Health expectations : an international journal of public participation in health care and health policy · 2024
    Pooled it
  2. Article
  3. Article
  4. Review
  5. Review
  6. Trying to Do What's Best: Maternal Perspectives About Toddler Sleep Health Among an Underresourced Sample of Mothers With Diverse Racial and Ethnic Identities.Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & Practitioners
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Weichao YuwenSchool of Nursing & Healthcare Leadership, University of Washington Tacoma, Tacoma, WA, United States.ORCID https://orcid.org/0000-0002-2712-0948
Miriana DuranDepartment of Health Services, School of Public Health, University of Washington, Seattle, WA, United States.ORCID https://orcid.org/0000-0003-2027-1070
Minghui TanSchool of Nursing & Healthcare Leadership, University of Washington Tacoma, Tacoma, WA, United States.ORCID https://orcid.org/0000-0002-0922-3521
Teresa M WardSchool of Nursing, University of Washington, Seattle, WA, United States.ORCID https://orcid.org/0000-0002-8651-4066
Sunny Chieh ChengSchool of Nursing & Healthcare Leadership, University of Washington Tacoma, Tacoma, WA, United States.ORCID https://orcid.org/0000-0001-8073-5733
Magaly RamirezDepartment of Health Services, School of Public Health, University of Washington, Seattle, WA, United States.ORCID https://orcid.org/0000-0001-5063-1028

Funding

Center for Innovation in Sleep Self-Management- Informatics CoreP30NR016585 · NINR · UNIVERSITY OF WASHINGTON · PI HEITKEMPER, MARGARET MCLEAN, WARD, TERESA M · 2016 to 2020
$2.4M
Sleep Self-Management Intervention for Children with JIAR21NR017471 · NINR · UNIVERSITY OF WASHINGTON · PI WARD, TERESA M · 2018 to 2019
$436k
NINR NIH HHS P30 NR016585NINR NIH HHS R21 NR017471
6 · The paper itself

Abstract

backgroundTen million parents provide unpaid care to children living with chronic conditions, such as asthma, and a high percentage of these parents are in marginalized communities, including racial and ethnic minority and low-income families. There is an urgent need to develop technology-enabled tailored solutions to support the self-care needs of these parents.

objectiveThis study aimed to use a participatory design approach to describe and compare Latino and non-Latino parents' current self-care practices, needs, and technology preferences when caring for children with asthma in marginalized communities.

methodsThe participatory design approach was used to actively engage intended users in the design process and empower them to identify needs and generate design ideas to meet those needs.

resultsThirteen stakeholders participated in three design sessions. We described Latino and non-Latino parents' similarities in self-care practices and cultural-specific preferences. When coming up with ideas of technologies for self-care, non-Latino parents focused on improving caregiving stress through journaling, daily affirmations, and tracking feelings, while Latino parents focused more on relaxation and entertainment.

conclusionsConsiderations need to be taken beyond language differences when developing technology-enabled interventions for diverse populations. The community partnership approach strengthened the study's inclusive design.

Indexed as

asthmacaregivingculturally appropriate technologymarginalizationminority groupsparentsqualitative researchself-care

Identifiers

PMID34156343
PMCPMC8277348

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.