Evidence map›Paper›PMID 34148384›Full record

ArticleMedical decision making : an international journal of the Society for Medical Decision Making2021

Systematic Development of Patient Decision Aids: An Update from the IPDAS Collaboration.

Holly O Witteman, Kristin G Maki, Gratianne Vaisson, Jeanette Finderup, Krystina B Lewis, Karina Dahl Steffensen, Caroline Beaudoin, Sandrine Comeau, Robert J Volk

Open access · goldAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Medical decision making : an international journal of the Society for Medical Decision Making, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 114 papers, 6 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
114citing papers in PubMed, 6 pooled it
32.2field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

114 citing papers in PubMed, 6 syntheses or guidelines pooled it, 178 citations in OpenAlex.

  1. A systematic review of patient decision aids for hypertension.BMC medical informatics and decision making · 2026
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  3. The Effect of Patient Decision Aid Attributes on Patient Outcomes: A Network Meta-Analysis of a Systematic Review.Medical decision making : an international journal of the Society for Medical Decision Making · 2025
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  10. A Randomized Pilot Trial of the Donor Conception Tool to Empower Parental Telling and Talking (TELL Tool) with Their Children About Their Genetic Origins.Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & Practitioners
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54 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 6 institutions in 3 countries.

Holly O WittemanDepartment of Family and Emergency Medicine, Faculty of Medicine, Laval University, Quebec City, Canada.ORCID 0000-0003-4192-0682
Kristin G MakiDepartment of Health Services Research, The University of Texas MD Anderson Cancer Center, Houston, TX, USA.
Gratianne VaissonDepartment of Family and Emergency Medicine, Faculty of Medicine, Laval University, Quebec City, Québec, Canada.
Jeanette FinderupResearch Centre for Patient Involvement & Department of Renal Medicine, Aarhus University & Aarhus University Hospital, Aarhus, Denmark.
Krystina B LewisSchool of Nursing, Faculty of Health Sciences, University of Ottawa, Ottawa, ON, Canada.ORCID 0000-0001-6761-7548
Karina Dahl SteffensenCenter for Shared Decision Making/Department of Oncology, Lillebaelt University Hospital of Southern Denmark, Vejle, Denmark.
Caroline BeaudoinDepartment of Family and Emergency Medicine, Laval University, Quebec, Canada.
Sandrine ComeauDepartment of Family and Emergency Medicine, Laval University, Quebec, Canada.
Robert J VolkDepartment of Health Services Research, The University of Texas MD Anderson Cancer Center, Houston, TX, USA.ORCID 0000-0001-8811-5854
Université Laval · CAThe University of Texas MD Anderson Cancer Center · USAarhus University Hospital · DKCentre hospitalier universitaire de Québec · CALillebaelt Hospital · DKUniversity of Ottawa · CA

Funding

Tumor Evolution and Metastasis ProgramP30CA016672 · NCI · UNIVERSITY OF TX MD ANDERSON CAN CTR · PI DIANE BODURKA · 1985 to 2026
$290.8M
CIHR FDN-148426NCI NIH HHS P30 CA016672
6 · The paper itself

Abstract

backgroundThe 2013 update of the evidence informing the quality dimensions behind the International Patient Decision Aid Standards (IPDAS) offered a model process for developers of patient decision aids.

objectiveTo summarize and update the evidence used to inform the systematic development of patient decision aids from the IPDAS Collaboration.

methodsTo provide further details about design and development methods, we summarized findings from a subgroup (

resultsThe 283 development processes varied substantially from minimal iteration cycles to more complex processes, with multiple iterations, needs assessments, and extensive involvement of end users. We summarized minimal, medium, and maximal processes from the data. Authors of 54 of 66 articles (82%) provided self-reported UCD-11 ratings. Self-reported scores were significantly higher than reviewer ratings (reviewers: mean [SD] = 6.45 [3.10]; authors: mean [SD] = 9.62 [1.16],

conclusionsDecision aid developers have embraced principles of user-centered design in the development of patient decision aids while also underreporting aspects of user involvement in publications about their tools. Templates may reduce the need for extensive development, and new approaches for rapid development of aids have been proposed when a more detailed approach is not feasible. We provide empirically derived benchmark processes and a reporting checklist to support developers in more fully describing their development processes.[Box: see text].

Indexed as

ChecklistDecision Support TechniquesHumansPatient ParticipationSelf Reportdecision makingpreference elicitationshared decision makingvalues clarification

Identifiers

PMID34148384
PMCPMC8664088
OpenAlexW3176558350

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.