Evidence map›Paper›PMID 34147577›Full record

ArticleJournal of pain and symptom management2021

Applying Human-Centered Design to Refinement of the Jumpstart Guide, a Clinician- and Patient-Facing Goals-of-Care Discussion Priming Tool.

Nauzley C Abedini, Susan E Merel, Katherine G Hicks, Janaki Torrence, Joanna Heywood, Ruth A Engelberg, Erin K Kross, J Randall Curtis

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of pain and symptom management, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Nauzley C AbediniDivision of Gerontology and Geriatric Medicine, Department of Medicine (N.C.A.), University of Washington, Seattle, Washington, USA; Cambia Palliative Care Center of Excellence at UW Medicine (N.C.A., S.E.M., K.G.H., J.T., J.H., R.A.E., E.K.K., J.R.C.), Seattle, Washington, USA.
Susan E MerelCambia Palliative Care Center of Excellence at UW Medicine (N.C.A., S.E.M., K.G.H., J.T., J.H., R.A.E., E.K.K., J.R.C.), Seattle, Washington, USA; Division of General Internal Medicine, Department of Medicine (S.E.M., K.G.H.), University of Washington, Seattle, Washington, USA.
Katherine G HicksCambia Palliative Care Center of Excellence at UW Medicine (N.C.A., S.E.M., K.G.H., J.T., J.H., R.A.E., E.K.K., J.R.C.), Seattle, Washington, USA; Division of General Internal Medicine, Department of Medicine (S.E.M., K.G.H.), University of Washington, Seattle, Washington, USA.
Janaki TorrenceCambia Palliative Care Center of Excellence at UW Medicine (N.C.A., S.E.M., K.G.H., J.T., J.H., R.A.E., E.K.K., J.R.C.), Seattle, Washington, USA; Division of Pulmonary, Critical Care, and Sleep Medicine, Department of Medicine (J.T., J.H., R.A.E., E.K.K., J.R.C.), University of Washington, Seattle, Washington, USA.
Joanna HeywoodCambia Palliative Care Center of Excellence at UW Medicine (N.C.A., S.E.M., K.G.H., J.T., J.H., R.A.E., E.K.K., J.R.C.), Seattle, Washington, USA; Division of Pulmonary, Critical Care, and Sleep Medicine, Department of Medicine (J.T., J.H., R.A.E., E.K.K., J.R.C.), University of Washington, Seattle, Washington, USA.
Ruth A EngelbergCambia Palliative Care Center of Excellence at UW Medicine (N.C.A., S.E.M., K.G.H., J.T., J.H., R.A.E., E.K.K., J.R.C.), Seattle, Washington, USA; Division of Pulmonary, Critical Care, and Sleep Medicine, Department of Medicine (J.T., J.H., R.A.E., E.K.K., J.R.C.), University of Washington, Seattle, Washington, USA.
Erin K KrossCambia Palliative Care Center of Excellence at UW Medicine (N.C.A., S.E.M., K.G.H., J.T., J.H., R.A.E., E.K.K., J.R.C.), Seattle, Washington, USA; Division of Pulmonary, Critical Care, and Sleep Medicine, Department of Medicine (J.T., J.H., R.A.E., E.K.K., J.R.C.), University of Washington, Seattle, Washington, USA.
J Randall CurtisCambia Palliative Care Center of Excellence at UW Medicine (N.C.A., S.E.M., K.G.H., J.T., J.H., R.A.E., E.K.K., J.R.C.), Seattle, Washington, USA; Division of Pulmonary, Critical Care, and Sleep Medicine, Department of Medicine (J.T., J.H., R.A.E., E.K.K., J.R.C.), University of Washington, Seattle, Washington, USA.

Funding

Using the Electronic Health Record to Identify and Promote Goals-of-Care Communication for Older Patients with Serious IllnessR01AG062441 · NIA · UNIVERSITY OF WASHINGTON · PI KROSS, ERIN KATHRYN · 2019 to 2023
$3.9M
NIA NIH HHS R01 AG062441
6 · The paper itself

Abstract

contextHuman-centered design provides a framework to understand the needs of patients and clinicians who are the target of goals-of-care discussion priming tools. Few studies employ human-centered design to develop and refine their tools.

objectivesTo describe how human-centered design can be applied to the development and refinement of clinician- and patient-facing inpatient goals-of-care discussion guides (Jumpstart guides).

methodsHuman-centered design was applied to the development and refinement of the inpatient Jumpstart guides in four phases: (1) discovering problems based on prior pilots, studies, and research team priorities; (2) further defining problems based on stakeholder and expert review of the current guides; (3) designing solutions based on consensus among stakeholders; and (4) validating solutions after research team review of stakeholder comments.

resultsFive initial problems were identified by the research team in phase 1. After expert and stakeholder review in phase 2, 30 additional problems were identified related to Jumpstart guide format, structure, and content. In phase 3, stakeholders proposed solutions to these 35 problems and reached consensus on 32 of these. There was disagreement in 3 areas, including how to frame discussions around cardiopulmonary resuscitation and 2 perceived barriers to inpatient goals-of-care discussions. In phase 4, the research team reviewed all stakeholder input and reached final consensus on solutions to all of the identified problems.

conclusionHuman-centered design is a useful tool for enhancing communication interventions in serious illness and can easily be integrated in future development and refinement of clinician- and patient-facing interventions to enhance goals-of-care discussions.

Indexed as

GoalsInpatientsHumansgoals-of-careHuman-centered designpalliative careserious illness communicationuser-centered design

Identifiers

PMID34147577
PMCPMC8648905

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.