ArticleDisability and health journal2021
The COVID-19 pandemic and quality of life outcomes of people with intellectual and developmental disabilities.
Article in Disability and health journal, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 1 of them a synthesis that pooled it.
What it found
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The trial behind it
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Who cites it
23 citing papers in PubMed, 1 synthesis or guideline pooled it, 56 citations in OpenAlex.
- The Right to Sexuality, Reproductive Health, and Found a Family for People with Intellectual Disability: A Systematic Review.International journal of environmental research and public health · 2023Pooled it
- 'They didn't trust us to follow the rules' - a qualitative study of how Irish adults with mild and moderate intellectual disabilities experienced the COVID-19 pandemic.International journal of developmental disabilities · 2026Article
- Quality of life among people with disabilities and its related factors in Iran: a cross-sectional study.BMC public health · 2025Article
- Perspectives of Adults with Intellectual Disabilities on Quality of Life: A Qualitative Study.International journal of environmental research and public health · 2024Article
- Proxy Responses in Research on COVID-19 Among People With Intellectual and Developmental Disabilities.American journal on intellectual and developmental disabilities · 2024Article
- Assessing the Usability and Feasibility of Digital Assistant Tools for Direct Support Professionals: Participatory Design and Pilot-Testing.JMIR human factors · 2024Article
- Quality of life, satisfaction with care, and the experiences of adults with intellectual and developmental disabilities before and during COVID-19.Disability and health journal · 2024Article
- Perceived barriers and facilitators to infection prevention and control in Dutch residential care facilities for people with intellectual and developmental disabilities: a cross-sectional study.BMC public health · 2024Article
- Perceived Impact of the COVID-19 Pandemic on Adults with Intellectual and Developmental Disability: A Qualitative Study.Journal of intellectual disabilities : JOID · 2024Article
- The Impact of Emergency Pandemic HCBS Funding on the Continuity and Security of People with Intellectual and Developmental Disabilities.Journal of autism and developmental disorders · 2024Article
- An update of the reported effects of the COVID-19 pandemic on person with intellectual disability and their carers: a scoping review.Annals of medicine · 2023Article
- How COVID-19 impacted people with disabilities: A qualitative study in Delaware.Public health in practice (Oxford, England) · 2023Article
- Article
- Mental Health of People with Intellectual Disabilities Living in Residential Care before, during, and after Lockdown.Behavioral sciences (Basel, Switzerland) · 2023Article
- Impact of the COVID-19 Pandemic on Autistic Adults: a Scoping Review.Current developmental disorders reports · 2023Article
- Impact of the COVID-19 pandemic on the care of rare and undiagnosed diseases patients in France: a longitudinal population-based study.Orphanet journal of rare diseases · 2022Article
- Anthropometric Indicators of the Cardiometabolic Risk, Muscle Strength, and Functional Capacity of Schoolchildren with Intellectual Disabilities during Lockdown in Chile.Children (Basel, Switzerland) · 2022Article
- Stressors associated with the COVID-19 pandemic, disability, and mental health: Considerations from the Intermountain West.Stress and health : journal of the International Society for the Investigation of Stress · 2022Article
- Supporting the needs of people with intellectual and developmental disabilities 1 year into the COVID-19 pandemic: An international, mixed methods study of nurses' perspectives.Journal of policy and practice in intellectual disabilities · 2022Article
- The mental health and well-being of adults with intellectual disability during the COVID-19 pandemic: A narrative review.Journal of policy and practice in intellectual disabilities · 2022Review
Corrections and comments
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Authors and funding
1 author at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPeople with intellectual and developmental disabilities (PWIDD) are contracting and dying of COVID-19 at significantly greater rates than nondisabled people and people with other disabilities. Despite the increased risk of COVID-19 for the IDD community, there has been less attention drawn to the impact of the pandemic on people with IDD, especially beyond their health and safety. Yet, PWIDD also face unique challenges as a result of the pandemic compared to other populations.
objectiveThe purpose of this study was to explore the impact of the COVID-19 pandemic on the quality of life outcomes of PWIDD.
methodsWe conducted a secondary analysis of Personal Outcome Measures® interviews from 2019 to 2020 (n = 2284).
resultsThere were significant differences in the following quality of life outcomes of PWIDD between 2019 and 2020: continuity and security; interact with other members of the community; participate in the life of the community; intimate relationships; and, choose goals.
conclusionsOur findings suggest the COVID-19 pandemic has negatively hindered the quality of life outcomes of PWIDD in a number of different areas. While the pandemic has been undoubtably hard on the IDD community, in many ways it has simply intensified an underfunded and fractured IDD service system. However the IDD service system evolves during and after the pandemic, it must be done in a way that prioritizes the quality of life of PWIDD and what is most important to them.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.