ArticleThe Journal of rural health : official journal of the American Rural Health Association and the National Rural Health Care Association2022
Perspectives of cancer prevention and control resources from stakeholders in rural southern Illinois.
Article in The Journal of rural health : official journal of the American Rural Health Association and the National Rural Health Care Association, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
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Who cites it
10 citing papers in PubMed.
- Beliefs and perceptions of genetic testing by clinical, demographic, and health characteristics: A U.S.-based study utilizing the health information national trends (HINTS) survey.Preventive medicine reports · 2025Article
- Capturing Community Perspectives in a Statewide Cancer Needs Assessment: Online Focus Group Study.JMIR cancer · 2025Article
- "Just give it to us straight!": a qualitative analysis of midwestern rural lung cancer survivors and caregivers about survivorship care experiences.Journal of cancer survivorship : research and practice · 2025Article
- Adapting a Research and Community Capacity-Building Program to Address Rural Cancer Burden and Facilitate Partnership Development Between Rural Community Stakeholders and an Urban Comprehensive Cancer Center.Journal of cancer education : the official journal of the American Association for Cancer Education · 2023Article
- Assessing the availability of trusted health information in a rural Appalachia community using social network analysis.Heliyon · 2023Article
- Rural-Urban Disparities in Receipt of Surgery for Potentially Resectable Non-Small Cell Lung Cancer.The Journal of surgical research · 2023Article
- Qualitative analysis of cancer care experiences among rural cancer survivors and caregivers.The Journal of rural health : official journal of the American Rural Health Association and the National Rural Health Care Association · 2022Article
- Consequences of Structural Urbanism: Urban-Rural Differences in Cancer Patients' Use and Perceived Importance of Supportive Care Services from a 2017-2018 Midwestern Survey.International journal of environmental research and public health · 2022Article
- The Rural Household Production of Health Approach: Applying Lessons from Zambia to Rural Cancer Disparities in the U.S.International journal of environmental research and public health · 2022Article
- Distance and Transportation Barriers to Colorectal Cancer Screening in a Rural Community.Journal of primary care & community healthArticle
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
purposeRural residents have a higher cancer burden than urban residents, which is likely related to multiple socioecological factors. This study sought to investigate the perspectives of a diverse set of rural stakeholders regarding access to cancer prevention and control resources in rural southern Illinois.
methodsStakeholders were recruited from counties in southern Illinois and included residents (cancer survivors or caregivers), leaders of community-based organizations with health-related missions, and health care providers. Individual interviews and focus groups assessed recommended cancer prevention, control, and treatment resources; helpfulness of regional resources; and needed resources. The research team used an iterative approach to thematic analysis wherein codes were derived inductively and refined repeatedly to reveal overarching themes.
findingsForty-four stakeholders reported challenges to health care access (eg, travel distance, financial burdens, and poor quality of care) and limited access to supportive care services (lack of caregiver support and "spotty" area resources). To mitigate these barriers, local residents used a combination of individual (self-reliance and adaptive measures) and organizational (patient navigation and financial services) approaches. Finally, stakeholders reported multiple forms of cancer control and prevention communication, including formal discussions with health care providers and various types of informal social support (eg, friends and family).
conclusionsStakeholders experienced barriers to cancer prevention and control often mitigated by a reliance on personal adaptations, nonclinical organizational supports, and informal support systems. While resources remain minimal in southern Illinois, researchers and practitioners must make efforts to leverage existing community organizations and social networks to improve cancer outcomes in this region.
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