ArticleHealth expectations : an international journal of public participation in health care and health policy2021
'I hated being ghosted' - The relevance of social participation for living well with post-stroke aphasia: Qualitative interviews with working aged adults.
Article in Health expectations : an international journal of public participation in health care and health policy, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 2 of them syntheses that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
12 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- The Experiences of Social Connection and Isolation in Adults With Acquired Brain Injury: A Qualitative Systematic Review and Metasynthesis.Health expectations : an international journal of public participation in health care and health policy · 2025Pooled it
- Social participation of stroke patients: a bibliometric analysis.Frontiers in neurology · 2025Pooled it
- Trial
- Revisiting Western Aphasia Battery-Revised in the Context of Mild Impairment.American journal of speech-language pathology · 2026Article
- Advancing aphasia psychological care in Ireland: A participatory study with people with aphasia and clinicians.PloS one · 2026Article
- A scoping review of patient and public involvement in empirical stroke research.International journal of stroke : official journal of the International Stroke Society · 2024Article
- Moving Toward Anti-Ableist Practices in Aphasia Rehabilitation and Research: A Viewpoint.American journal of speech-language pathology · 2024Article
- Social participation, resilience, and coping tendency in a sample of stroke survivors: a multi-centre cross-sectional study in China.Journal of rehabilitation medicine · 2024Article
- Stroke and liminality: narratives of reconfiguring identity after stroke and their implications for person-centred stroke care.Frontiers in rehabilitation sciences · 2024Article
- Post-stroke aphasia rehabilitation using an adapted visual P300 brain-computer interface training: improvement over time, but specificity remains undetermined.Frontiers in human neuroscience · 2024Article
- Regulating emotional responses to aphasia to re-engage in life: a qualitative interview study.International journal of language & communication disorders · 2022Article
- 'I hated being ghosted' - The relevance of social participation for living well with post-stroke aphasia: Qualitative interviews with working aged adults.Health expectations : an international journal of public participation in health care and health policy · 2021Article
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundIn the context of increasing incidence of stroke in working aged adults, there is a specific need to explore the views of working aged adults with post-stroke aphasia, whose communication difficulties may result in restricted social participation, loss of employment and changed relationship and parenting roles. This study aimed to explore the perspectives of working aged adults with post-stroke aphasia in relation to social participation and living well with aphasia (LWA). DESIGN AND
participantsWe conducted qualitative interviews with 14 people with post-stroke aphasia (PWA). Data were analysed following principles of reflexive, thematic analysis. Patient or Public Contribution: A Public and Patient Involvement aphasia advisory group inputted into the study design and interpretation of data.
resultsSocial participation spanned 5 themes: Relationships and roles; Social support; Peer network, Aphasia awareness; and Employment and training. Meaningful, interesting social participation for LWA is individually defined. Working aged PWA may require flexible support with parenting, accessing a diverse social network and finding opportunities for meaningful social connection, training and employment.
conclusionsThe findings extend knowledge of social participation in the context of LWA for working aged adults by elucidating the individually defined nature of meaningful participation and how PWA may need flexible support with parenting, accessing a diverse social network and training and employment. For aphasia research, policy and services to be relevant, it is crucial that working aged PWA are meaningfully involved in setting the aphasia agenda.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.