ArticleArchives of public health = Archives belges de sante publique2021
The everyday life situation of caregivers to family members who have had a stroke and received the rehabilitation intervention F@ce in Uganda.
Article in Archives of public health = Archives belges de sante publique, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers, 1 of them a synthesis that pooled it.
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Who cites it
10 citing papers in PubMed, 1 synthesis or guideline pooled it, 18 citations in OpenAlex.
- Mixed Methods Research on Family Caregiving for Stroke Survivors: A Methodological Systematic Review.Journal of advanced nursing · 2026Pooled it
- Mapping the evidence on mHealth interventions for cardiovascular event care in Africa: a scoping review.Heart (British Cardiac Society) · 2025Article
- Family Members' Experiences of a Person-Centered Information and Communication Technology-Supported Intervention for Stroke Rehabilitation (F@ce 2.0): Qualitative Analysis.JMIR rehabilitation and assistive technologies · 2025Article
- Implementing and Evaluating a Mobile Phone-Supported and Family-Centered Rehabilitation Program for People With Stroke in Uganda (F@ce 2.0): Protocol for a Randomized Controlled Trial.JMIR research protocols · 2024Article
- Struck by stroke - experiences of living with stroke in a rural area in Uganda.BMC public health · 2023Article
- Basic psychological needs satisfaction of stroke patients: a qualitative study.BMC psychology · 2023Article
- Psychological status on informal carers for stroke survivors at various phases: a cohort study in China.Frontiers in psychiatry · 2023Article
- Caregiving Situation as a Predictor of Subjective Caregiver Burden: Informal Caregivers of Older Adults during the COVID-19 Pandemic.International journal of environmental research and public health · 2022Article
- Development and Psychometric Properties of the Caregiver Burden Scale in Polish Caregivers of Stroke Patients.Psychology research and behavior management · 2022Article
- Factors Predicting Financial Burden Among Family Caregivers of Dependent Stroke Survivors in Selected Tertiary Care Hospitals: A Study From Thailand.SAGE open nursingArticle
Corrections and comments
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Authors and funding
3 authors at 2 institutions in 1 country.
Funding
Abstract
backgroundStroke is increasing in Africa and consequences such as limitations in the performance of activities in everyday life persist a long time. A family member might need to care for and assist the person who has had a stroke. The life situation of these caregivers thereby changes, which could lead to increased workload and new responsibilities in caring for which they lack but request knowledge. During the F@ce rehabilitation program, the caregivers received counseling, which is uncommon in the African context. The aim of the study was twofold; (1) to investigate the perceived caregiver burden and life satisfaction and, (2) to explore and describe the life situation for caregivers to persons that have had a stroke and received the mobile phone supported rehabilitation F@ce in urban areas in Uganda.
methodA mixed method design was used. Twelve caregivers took part in a semi-structured interview regarding their everyday life situation and responded to questionnaires on caregiver burden and life satisfaction. Latent qualitative content analysis was used to analyse the interviews.
resultsFive categories were identified in the caregivers' experiences of their life situation: Feels obligated but is just a natural commitment; a tightly scheduled everyday life; being the supporting relative; the caregivers´ approach as rehabilitators; and being supported by the rehabilitation intervention. The caregivers rated relatively high on the Caregiver Burden Scale and two thirds of the sample rated their satisfaction with life as a whole as dissatisfying. Further ratings on the Life Satisfaction checklist revealed that the financial, vocational, leisure and family situations were dissatisfying.
conclusionsEven if it was viewed as a natural commitment to be a caregiver when a family member had had a stroke, the life situation changed substantially for those who took on the caregiving role. Caregiving responsibilities were challenging as well as a heavy workload and a strained financial situation as many were giving up on jobs. The participants felt burdened and rated a low life satisfaction. The F@ce intervention was, however, expressed as valued and involved support and advice in their caregiving situation as well as information on stroke which relieved stress among them.
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