Evidence map›Paper›PMID 34129212›Full record

ArticleJournal of cancer survivorship : research and practice2022

Narrative recognition and identification: a qualitative pilot study into reading literary texts with advanced cancer patients.

Albert Kamp, Zarah Bood, Michael Scherer-Rath, Yvonne Weeseman, Nirav Christophe, Henny Dörr, José Sanders, Mirjam Sprangers, Esther Helmich, Liesbeth Timmermans and 2 more

Open access · hybridAbstract read
In one paragraph

Article in Journal of cancer survivorship : research and practice, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed
0.9field-weighted citation impact, top 28% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed, 9 citations in OpenAlex.

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  5. EClinicalMedicine · 2024
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  8. Co-creative art processes with cancer patients from the artists' perspective: a qualitative study exploring resonance theory.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023
    Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors at 3 institutions in 2 countries.

Albert KampFaculty of Philosophy, Theology and Religious Studies, Radboud University, Nijmegen, The Netherlands.ORCID 0000-0002-7849-232X
Zarah BoodDepartment of Medical Oncology, Cancer Center Amsterdam, Amsterdam University Medical Centers, University of Amsterdam, Meibergdreef 9, Amsterdam, The Netherlands.
Michael Scherer-RathFaculty of Philosophy, Theology and Religious Studies, Radboud University, Nijmegen, The Netherlands.
Yvonne WeesemanDepartment of Medical Oncology, Cancer Center Amsterdam, Amsterdam University Medical Centers, University of Amsterdam, Meibergdreef 9, Amsterdam, The Netherlands.
Nirav ChristopheHKU University of the Arts Utrecht, Utrecht, The Netherlands.
Henny DörrHKU University of the Arts Utrecht, Utrecht, The Netherlands.
José SandersCentre for Language Studies, Radboud University, Nijmegen, The Netherlands.
Mirjam SprangersDepartment of Medical Psychology, Amsterdam Public Health, Amsterdam University Medical Centers, University of Amsterdam, Amsterdam, The Netherlands.
Esther HelmichAmsta Healthcare Organisation, Amsterdam, The Netherlands.
Liesbeth TimmermansDepartment of Primary and Community Care, Radboud University Medical Centre, Nijmegen, The Netherlands.
Ellen van WoldeFaculty of Philosophy, Theology and Religious Studies, Radboud University, Nijmegen, The Netherlands.
Hanneke W M van LaarhovenDepartment of Medical Oncology, Cancer Center Amsterdam, Amsterdam University Medical Centers, University of Amsterdam, Meibergdreef 9, Amsterdam, The Netherlands. h.vanlaarhoven@amsterdamumc.nl.
Radboud University Nijmegen · NLAmsterdam University Medical Centers · NLUniversity of the Arts Utrecht · NL

Funding

Dutch Cancer Society 11507
6 · The paper itself

Abstract

purposePatients with advanced cancer can experience their disease as a contingent life event. The sudden interruption of their life stories can obscure life goals and disrupt meaning making. In the context of the research project "In search of stories," we aim to investigate the reading and discussion of selected stories which present ways of dealing with a contingent life event. In addition, we examine the use of a newly developed guide for reading these exemplary texts together with advanced cancer patients.

methodsThis qualitative study describes the experiences of five patients with advanced cancer who participated in a guided reading and discussion about selected literary texts. The intervention consisted of reading a selected story, after which each patient was interviewed, using the reading guide as a conversation template. The interviews were then thematically analyzed for their conceptual content using a template analysis.

resultsAll five conversations showed some form of recognition in reaction to the chosen text, which led to personal identification of experiences of contingency, such as loss of life goals, impending death, or feelings of uncertainty. Besides the important role of identification, revealed by the responses to the questions in the reading guide, the discussion of the text helped them articulate their own experience and sources of meaning. Diverse worldviews came to the fore and concepts of meaning such as fate, life goals, quality of life, and death.

conclusionsFirst experiences with our newly developed reading guide designed to support a structured reading of stories containing experiences of contingency suggest that it may help patients to express their own experiences of contingency and to reflect on these experiences. IMPLICATIONS FOR CANCER SURVIVORS: The intervention tested in this study may contribute to supportive care for survivors with advanced cancer, but further research is needed to evaluate its effect on quality of life.

Indexed as

NeoplasmsQuality of LifeHumansPilot ProjectsQualitative ResearchSurvivorsExperiences of contingencyLife storyNarrative identificationPatient careQuality of lifeReading guide

Identifiers

PMID34129212
PMCPMC9142438
OpenAlexW3170427117

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.