ArticlePediatric nephrology (Berlin, Germany)2021
Caregiver burden in pediatric dialysis: application of the Paediatric Renal Caregiver Burden Scale.
Article in Pediatric nephrology (Berlin, Germany), 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
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Who cites it
11 citing papers in PubMed, 18 citations in OpenAlex.
- Family support and caregiver involvement are important for access to pediatric pre-emptive kidney transplantation.Pediatric nephrology (Berlin, Germany) · 2026Article
- Quantification of Urinary NGAL Using Volumetric Dried Urine Sampling.Biomedicines · 2026Article
- Caregiver Perspectives for Pediatric Patients with Acute Kidney Injury on Dialysis: A Narrative Review.Journal of multidisciplinary healthcare · 2026Review
- Assessing burden among caregivers of pediatric dialysis and kidney transplant patients.Pediatric nephrology (Berlin, Germany) · 2025Article
- Caregiver burden in pediatric acute kidney injury and chronic kidney disease.Pediatric research · 2024Article
- Affiliate stigma and caregiver burden in parents of children with epilepsy.Preventive medicine reports · 2024Article
- Bioimpedance analysis in children on peritoneal dialysis: to fill or not to fill?Pediatric nephrology (Berlin, Germany) · 2024Article
- A scoping review of the experiences and well-being of siblings of children with chronic kidney disease: implications for practice and research.Pediatric nephrology (Berlin, Germany) · 2022Article
- Caregiver perspectives of dialysis initiation for children with kidney disease: a qualitative study.Pediatric nephrology (Berlin, Germany) · 2022Article
- When Dialysis "Becomes Life": Pediatric Caregivers' Lived Experiences Obtained From Patient-Reported Outcomes Measures.Frontiers in pediatrics · 2022Article
- Chronic peritoneal dialysis in children with chronic kidney disease: An experience from a North Indian teaching institute.Journal of family medicine and primary care · 2021Article
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Authors and funding
4 authors at 4 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundCaring for a child with kidney failure on dialysis profoundly impacts caregivers' lives, yet the depth of this burden is not well understood. The Paediatric Renal Caregiver Burden Scale (PR-CBS) is a recently validated instrument used to measure caregiver burden in this population.
methodsWe performed a cross-sectional study of caregiver burden for caregivers of children with kidney failure receiving dialysis at three pediatric centers. Caregivers completed the PR-CBS instrument as part of a larger qualitative study of caregiver experience. We performed descriptive statistics. T-tests were used to examine differences between dialysis modality and within key demographics. Multivariate linear regression was utilized to assess associations between significant factors and total score.
resultsTen caregivers of children receiving peritoneal dialysis (PD) and 21 receiving hemodialysis (HD) participated. Total burden score and mean score for every domain was higher for caregivers of children on HD compared to PD. PR-CBS score was significantly associated with younger child age and married status in caregivers. In adjusted multivariate analysis, dialysis modality and married marital status were significantly associated with PR-CBS score.
conclusionsThis study found that dialysis caregivers experience significant caregiver burden and demonstrates the utility of the PR-CBS in an American population. We found higher burdens among HD caregivers, younger children, and married caregivers. While these findings must be replicated on a larger scale, they suggest possible areas for targeted interventions to improve the quality of life of children with kidney failure and their families. A higher resolution version of the Graphical abstract is available as Supplementary information.
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