ArticleJournal of autism and developmental disorders2022
Challenges and Growth: Lived Experience of Adolescents and Young Adults (AYA) with a Sibling with ASD.
Article in Journal of autism and developmental disorders, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
10 citing papers in PubMed, 27 citations in OpenAlex.
- "Am I My Sibling's Keeper?": the Lived experiences of adult siblings of individuals with Autism Spectrum Disorder in China.International journal of qualitative studies on health and well-being · 2026Article
- Burden, Openness to Sharing, and Parental Attention: Dimensions of Emerging Adult Siblings' Acceptance of a Brother or Sister With Developmental Disabilities.Journal of autism and developmental disorders · 2026Article
- "Becoming Parents Before Our Time": Experiences and Prospective Caregiving Roles of Emerging Adult Siblings of Individuals With Autism.Journal of autism and developmental disorders · 2026Article
- Validation of the sibling acceptance questionnaire among typically-developing emerging adult siblings of individuals with disabilities.Frontiers in psychology · 2026Article
- Psychosocial adaptation of siblings of autistic individuals: current evidence, controversies, and future directions.Frontiers in psychology · 2026Review
- Sibling Relationship Profiles of Autistic Youths in a Social-Ecological Context.Journal of autism and developmental disorders · 2025Article
- 'It Feels Very Weird and Normal at the Same Time': Sibling Perceptions of Their Relationships With an Autistic Brother or Sister With Complex Care Needs.Journal of applied research in intellectual disabilities : JARID · 2025Article
- Conceptualization, use, and outcomes associated with compassion in the care of youth with childhood-onset disabilities: a scoping review.Frontiers in psychology · 2024Article
- The Quality of Life among Siblings of Autistic Individuals: A Scoping Review.Journal of clinical medicine · 2023Article
- Acceptability of A Virtual Mind-Body Group Intervention for Teen Siblings of Children with Autism Spectrum Disorder.Journal of autism and developmental disorders · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors at 4 institutions in 1 country.
Funding
Abstract
Adolescent and young adult (AYA) siblings of individuals with autism experience unique challenges that can promote both growth and emotional maladjustment. This study explored sibling and parent reports of siblings' lived experiences and identified learning, stressors, and concerns from those experiences. 20 neurotypical (NT) AYA siblings (ages 13-24), and 21 parents were interviewed. Themes that emerged from the data analysis included: (1) learning, empathy, and compassion (2) relationship between the degree of functional impairment and the nature of the sibling relationship; (3) reluctance to share information about siblings with peers; (4) hypervigilance associated with unpredictable behavior; (5) worries and concerns about the future. These findings contribute to the existing literature on the impact and nature of neurotypical siblings' lived experience.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.