ArticleJournal of the National Medical Association2021
Women with sickle cell disease report low knowledge and use of long acting reversible contraception.
Article in Journal of the National Medical Association, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers.
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Who cites it
23 citing papers in PubMed.
- Ovarian Reserve in Women of Reproductive Age With Sickle Cell Anaemia: A Scoping Review.EJHaem · 2026Review
- Patterns of hormonal contraception use in women with sickle cell disease and employer-sponsored insurance.Contraception · 2026Article
- Postpartum Long-Acting Reversible Contraception Use Among People With Sickle Cell Disease in the United States.O&G open · 2026Article
- Review
- A health literate evaluation of a reproductive health education program for young men with sickle cell disease.Journal of communication in healthcare · 2026Article
- Proactive management to improve outcomes of high-risk pregnancy in people with sickle cell disease.Hematology. American Society of Hematology. Education Program · 2025Review
- Postpartum Tubal Sterilization in Sickle Cell Disease in the 2012-2019 National Inpatient Sample.Journal of women's health (2002) · 2025Article
- Role of Menstrual Bleeding Assessments in Sickle Cell Clinics.JAMA network open · 2025Article
- Understanding and treating menstruation associated sickle cell pain.Contraception and reproductive medicine · 2025Review
- Estrogen, progestin, and beyond: thrombotic risk and contraceptive choices.Hematology. American Society of Hematology. Education Program · 2024Review
- Sexually transmitted infection testing and diagnosis in adolescents and young adults with sickle cell disease.Pediatric blood & cancer · 2024Article
- Sickle cell disease and infertility risks: implications for counseling and care of affected girls and women.Expert review of hematology · 2024Review
- Disease severity drives risk of venous thrombotic events in women with sickle cell disease in a single-center retrospective study.Research and practice in thrombosis and haemostasis · 2024Article
- Society for Maternal-Fetal Medicine Consult Series #68: Sickle cell disease in pregnancy.American journal of obstetrics and gynecology · 2024Article
- Pain Frequency and Health Care Utilization Patterns in Women with Sickle Cell Disease Experiencing Menstruation-Associated Pain Crises.Journal of women's health (2002) · 2023Article
- Contraception, pregnancy, and STI counseling and care among transitioning young adults with sickle cell disease.Blood advances · 2023Article
- Comparison of thromboembolism outcomes in patients with sickle cell disease prescribed hormonal contraception.Blood advances · 2023Article
- Article
- Pregnancy outcomes in women with sickle cell disease in California.American journal of hematology · 2023Article
- No crystal stair: supporting fertility care and the pursuit of pregnancy in women with sickle cell disease.Hematology. American Society of Hematology. Education Program · 2022Article
Corrections and comments
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Authors and funding
7 authors.
Funding
Abstract
backgroundHigh rates of unplanned pregnancy and low rates of contraception use are reported among women with sickle cell disease (SCD). Pregnancy in women with SCD is high risk and unintended pregnancies limit opportunities to provide indicated preconception care and counseling. Contraceptive use in women with SCD is complicated by a lack of disease-specific data about treatment risks and benefits. The purpose of this study was to describe, for the first time in the U.S. context, contraceptive use, knowledge and preferences in adult cohort of women with SCD. MATERIALS AND
methodsA single-center survey study of women with SCD of reproductive age from our Center's adult and pediatric sickle cell centers.
resultsSeventy-eight women ages 28-65 years (median 33.5 years, IQR 16) completed surveys. Seventy-three percent of respondents had an average of 2.5 pregnancies (S.D. 1.22) and of these, 58% reported being pregnant when they did not want to be pregnant at least once. The most common forms of contraception used were condoms (87%), birth control pills (46%), medroxyprogesterone (44%) and withdrawal (44%). Twenty-two percent of subjects reported using a long-acting reversible form of contraception and 21% reported a tubal ligation or partner vasectomy. Respondents demonstrated low knowledge of the efficacy of contraceptive options and over-estimated the risk of pregnancy with the IUD, implant. Contraceptive priorities included pregnancy prevention, decreasing HIV transmission and effects on SCD symptoms.
conclusionsWomen with SCD have high rates of unintended pregnancy, low knowledge of contraceptive efficacy and low use of long-acting reversible contraception.
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