ArticleJournal of the American Medical Informatics Association : JAMIA2021
Feeling better on hemodialysis: user-centered design requirements for promoting patient involvement in the prevention of treatment complications.
Article in Journal of the American Medical Informatics Association : JAMIA, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. It is linked to trial NCT03171545 (Enhancing the Cardiovascular Safety of Hemodialysis Care), which is not on this map. Cited by 13 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Enhancing the Cardiovascular Safety of Hemodialysis Care: A Cluster-Randomized, Comparative Effectiveness Trial of Multimodal Provider Education and Patient Activation Interventions (Dialysafe)
Who cites it
13 citing papers in PubMed, 22 citations in OpenAlex.
- Closing the digital divide for hemodialysis patients: implementing technology training and support in a digital patient activation intervention.Journal of the American Medical Informatics Association : JAMIA · 2026Article
- Comprehensive management of hemodialysis catheter-related bloodstream infections: a narrative review.Frontiers in cellular and infection microbiology · 2026Review
- Self-management interventions for adult haemodialysis patients: a scoping review of randomized controlled trials.BMC nephrology · 2025Article
- Systematic Review of Patient and Caregiver Involvement in CKD Research.Kidney international reports · 2025Article
- Exploring mHealth interventions for medication management: a scoping review of digital tools, implementation barriers, and patient outcomes.PeerJ. Computer science · 2025Article
- Developing a Tailored eHealth Self-Management Intervention for Patients With Chronic Kidney Disease in China: Intervention Mapping Approach.JMIR formative research · 2024Article
- Enhancing the Cardiovascular Safety of Hemodialysis Care Using Multimodal Provider Education and Patient Activation Interventions: Protocol for a Cluster Randomized Controlled Trial.JMIR research protocols · 2023Article
- Inviting patients to identify diagnostic concerns through structured evaluation of their online visit notes.Journal of the American Medical Informatics Association : JAMIA · 2022Article
- Investigating the Interoperable Health App Ecosystem at the Start of the 21st Century Cures Act.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2022Review
- Guidance for publishing qualitative research in informatics.Journal of the American Medical Informatics Association : JAMIA · 2021Article
- Psychosocial Well-Being of Patients with Kidney Failure Receiving Haemodialysis during a Pandemic: A Survey.Healthcare (Basel, Switzerland) · 2021Article
- Patient safety and quality of care: a key focus for clinical informatics.Journal of the American Medical Informatics Association : JAMIA · 2021Article
- Usability Evaluation of a Tablet-Based Intervention to Prevent Intradialytic Hypotension in Dialysis Patients During In-Clinic Dialysis: Mixed Methods Study.JMIR human factors · 2021Article
Corrections and comments
- Erratum issued
Authors and funding
10 authors at 3 institutions in 1 country.
Funding
Abstract
objectiveHemodialysis patients frequently experience dialysis therapy sessions complicated by intradialytic hypotension (IDH), a major patient safety concern. We investigate user-centered design requirements for a theory-informed, peer mentoring-based, informatics intervention to activate patients toward IDH prevention.
methodsWe conducted observations (156 hours) and interviews (n = 28) with patients in 3 hemodialysis clinics, followed by 9 focus groups (including participatory design activities) with patients (n = 17). Inductive and deductive analyses resulted in themes and design principles linked to constructs from social, cognitive, and self-determination theories.
resultsHemodialysis patients want an informatics intervention for IDH prevention that collapses distance between patients, peers, and family; harnesses patients' strength of character and resolve in all parts of their life; respects and supports patients' individual needs, preferences, and choices; and links "feeling better on dialysis" to becoming more involved in IDH prevention. Related design principles included designing for: depth of interpersonal connections; positivity; individual choice and initiative; and comprehension of connections and possible actions. DISCUSSION: Findings advance the design of informatics interventions by presenting design requirements for outpatient safety and addressing key design opportunities for informatics to support patient involvement; these include incorporation of behavior change theories. Results also demonstrate the meaning of design choices for hemodialysis patients in the context of their experiences; this may have applicability to other populations with serious illnesses.
conclusionThe resulting patient-facing informatics intervention will be evaluated in a pragmatic cluster-randomized controlled trial in 28 hemodialysis facilities in 4 US regions.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.