Evidence map›Paper›PMID 34113868›Full record

ArticleHeart rhythm O22020

Involving patients as key stakeholders in the design of cardiovascular implantable electronic device data dashboards: Implications for patient care.

Carly Daley, Romisa Rohani Ghahari, Michelle Drouin, Ryan Ahmed, Shauna Wagner, Lauren Reining, Amanda Coupe, Tammy Toscos, Michael Mirro

Open access · goldAbstract read
In one paragraph

Article in Heart rhythm O2, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed, 1 pooled it
0.8field-weighted citation impact, top 20% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 1 synthesis or guideline pooled it, 9 citations in OpenAlex.

  1. Pooled it
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 1 institution in 1 country.

Carly DaleyParkview Mirro Center for Research and Innovation, Parkview Health, Fort Wayne, Indiana.
Romisa Rohani GhahariParkview Mirro Center for Research and Innovation, Parkview Health, Fort Wayne, Indiana.
Michelle DrouinParkview Mirro Center for Research and Innovation, Parkview Health, Fort Wayne, Indiana.
Ryan AhmedParkview Mirro Center for Research and Innovation, Parkview Health, Fort Wayne, Indiana.
Shauna WagnerParkview Mirro Center for Research and Innovation, Parkview Health, Fort Wayne, Indiana.
Lauren ReiningParkview Mirro Center for Research and Innovation, Parkview Health, Fort Wayne, Indiana.
Amanda CoupeParkview Mirro Center for Research and Innovation, Parkview Health, Fort Wayne, Indiana.
Tammy ToscosParkview Mirro Center for Research and Innovation, Parkview Health, Fort Wayne, Indiana.
Michael MirroParkview Mirro Center for Research and Innovation, Parkview Health, Fort Wayne, Indiana.
Parkview Health · US

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundData from remote monitoring (RM) of cardiovascular implantable electronic devices (CIEDs) currently are not accessible to patients despite demand. The typical RM report contains multiple pages of data for trained technicians to read and interpret and requires a patient-centered approach to be curated to meet individual user needs.

objectiveThe purpose of this study was to understand which RM data elements are important to patients and to gain design insights for displaying meaningful data in a digital dashboard.

methodsAdults with implantable cardioverter-defibrillators (ICDs) and pacemakers (PMs) participated in this 2-phase, user-centered design study. Phase 1 included a card-sorting activity to prioritize device data elements. Phase 2 included one-on-one design sessions to gather insights and feedback about a visual display (labels and icons).

resultsTwenty-nine adults (mean age 71.8 ± 11.6 years; 51.7% female; 89.7% white) participated. Priority data elements for both ICD and PM groups in phase 1 (n = 19) were related to cardiac episodes, device activity, and impedance values. Recommended replacement time for battery was high priority for the PM group but not the ICD group. Phase 2 (n = 10) revealed that patients would like descriptive, nontechnical terms to depict the data and icons that are intuitive and informative.

conclusionThis user-centered design study demonstrated that patients with ICDs and PMs were able to prioritize specific data from a comprehensive list of data elements that they had never seen before. This work contributes to the goal of sharing RM data with patients in a way that optimizes the RM feature of CIEDs for improving patient outcomes and clinical care.

Indexed as

Digital healthHealth informaticsImplantable cardioverter–defibrillatorPacemakerRemote monitoring

Identifiers

PMID34113868
PMCPMC8183860
OpenAlexW3025845948

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.