Evidence map›Paper›PMID 34112174›Full record

Trial reportBMC health services research2021

Mechanisms of impact and experiences of a person-centred transition programme for adolescents with CHD: the Stepstones project.

Markus Saarijärvi, Lars Wallin, Philip Moons, Hanna Gyllensten, Ewa-Lena Bratt

Registry-linked trialOpen access · goldAbstract readRandomized Controlled Trial
PubMed Full text at PMC Publisher
In one paragraph

Trial report in BMC health services research, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06823622 (Evaluation of the Digital Delivery of Person-centered Transitional Care to Empower Adolescents With Chronic Childhood-onset Diseases), which is not on this map. Cited by 15 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
15citing papers in PubMed, 1 pooled it
9.6field-weighted citation impact, top 2% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06823622 narecruitingnot on this mapstarted 2024, after this paper: background citation

Evaluation of the Digital Delivery of Person-centered Transitional Care to Empower Adolescents With Chronic Childhood-onset Diseases: The Digi-STEPSTONES Study

TypeinterventionalSponsorGöteborg UniversityRan2024 to 2028Enrolled100ConditionsAsthma in Children, TransplantationArmsStepstones transition program
3 · Its place in the literature

Who cites it

15 citing papers in PubMed, 1 synthesis or guideline pooled it, 39 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 3 institutions in 3 countries.

Markus SaarijärviInstitute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden. markus.saarijarvi@gu.se.
Lars WallinInstitute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.
Philip MoonsInstitute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.
Hanna GyllenstenInstitute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.
Ewa-Lena BrattInstitute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.
University of Gothenburg · SEDrottning Silvias barn- och ungdomssjukhus · SEKU Leuven · BE

Funding

Forskningsrådet om Hälsa, Arbetsliv och Välfärd STYA-2015/0003Hjärt-Lungfonden 20150535Vetenskapsrådet 2015-02503
6 · The paper itself

Abstract

backgroundDuring the past decade there has been some evaluation of transition programmes for adolescents with chronic conditions. However, this has rarely involved process evaluations focusing on mechanisms leading to outcomes, thus hampering implementation of these complex interventions. Our aim was to (I) describe adolescents' and parents' experiences of participating in a person-centred transition programme aiming to empower them in transition to adulthood and (II) explore the mechanisms of impact.

methodsA qualitative process evaluation was performed, embedded in a randomized controlled trial evaluating the effectiveness of a transition programme for adolescents with congenital heart disease in Sweden. A purposive sample of 14 adolescents and 12 parents randomized to the intervention group were interviewed after participation in the programme. Data were analysed deductively and inductively in NVivo v12.

resultsExperiences of participation in the transition programme were generally positive. Meeting a transition coordinator trained in person-centred care and adolescent health and embarking on an educational process based on the adolescents' prerequisites in combination with peer support were considered key change mechanisms. However, support to parents were not sufficient for some participants, resulting in ambivalence about changing roles and the unmet needs of parents who required additional support.

conclusionsParticipants experienced increased empowerment in several dimensions of this construct, thus demonstrating that the transition programme was largely implemented as intended and the evidence-based behaviour-change techniques used proved effective in reaching the outcome. These findings can inform future implementation of transition programmes and illuminate challenges associated with delivering a complex intervention for adolescents with chronic conditions.

Indexed as

Heart Defects, CongenitalParentsAdolescentAdultChronic DiseaseEmpowermentHumansSwedenAdolescentChronic diseaseParentProcess evaluationQualitative researchRandomized controlled trialTransition of care

Identifiers

PMID34112174
PMCPMC8194131
OpenAlexW3131398670

What OpenQuestion holds

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LicenceCC BY
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.