ArticleHealth expectations : an international journal of public participation in health care and health policy2021
Awareness of diagnosis, treatment and risk of late effects in Chinese survivors of childhood cancer in Hong Kong.
Article in Health expectations : an international journal of public participation in health care and health policy, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
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Who cites it
7 citing papers in PubMed.
- Knowledge Deficit About How Chemotherapy Affects Long-Term Survival in Testicular Tumor Patients.Cancers · 2025Article
- Accessibility of and Barriers to Long-Term Follow-Up Care for Childhood Cancer Survivors.JAMA network open · 2024Article
- Care Models and Barriers to Long-Term Follow-Up Care Among Childhood Cancer Survivors and Health Care Providers in Asia: A Literature Review.JCO global oncology · 2024Review
- Article
- Childhood cancer survivorship in China: An overview of the past two decades.Cancer medicine · 2022Review
- Integrating Complementary Medicine Into the Care of Childhood Cancer Survivors: A Brief Report on the Preliminary Framework and Implementation of an Educational Program.Frontiers in rehabilitation sciences · 2022Article
- Awareness of diagnosis, treatment and risk of late effects in Chinese survivors of childhood cancer in Hong Kong.Health expectations : an international journal of public participation in health care and health policy · 2021Article
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11 authors.
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Abstract
backgroundFor survivors of childhood cancer, awareness of personal health risks is a critical component of long-term health management.
objectiveTo evaluate the awareness of the diagnosis, treatment and risk of late effects among survivors of childhood cancer in Hong Kong.
methodsBetween June 2019 and March 2020, this cross-sectional study recruited 155 adult survivors (mean age = 26.9, standard deviation [SD] = 6.4 years) and 45 parents of paediatric survivors (mean age = 11.1, SD = 3.6 years) from a long-term follow-up clinic. At >10 years post-treatment (mean = 13.4, SD = 7.6 years), they completed a structured questionnaire to report their cancer-specific knowledge. Multiple linear regression analysis was conducted to identify clinical, socioeconomic and behavioural factors associated with poor awareness.
resultsThe majority of participants accurately recalled their diagnoses (73.5%) and major treatment modalities (chemotherapy 92.4%, radiation 82.9% and surgery 88.2%). However, less than half (45%) of the participants recognized more than 25% of the total late effects for which they were at risk. The highest levels of awareness were reported for endocrine problems (49%), neurocognitive impairment (44%) and secondary cancers (43%), and the lowest for peripheral neuropathy (21%) and vision problems (23%). Compared with survivors of haematological malignancies, those of central nervous system (CNS) tumours (standardized estimate [B] = -9.33, 95% confidence interval [95% CI]: -13.41 to -5.26) and non-CNS solid tumours (B = -8.47, 95% CI: -12.39 to -4.94) had less knowledge about their diagnosis. Retaining medical records (P < .0001) and better medical information-seeking habits (P = .048) were associated with better awareness.
conclusionsSurvivors of childhood cancer in Hong Kong have deficient awareness of their personal health risks. They may benefit from the provision of a survivorship care plan and personalized education regarding treatment-related late effects. PATIENT CONTRIBUTION: Patients contributed in designing the study tools. Results were presented at a non-governmental organization.
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