Evidence map›Paper›PMID 34098745›Full record

ArticleAutism : the international journal of research and practice2022

Pragmatic adaptations of telehealth-delivered caregiver coaching for children with autism in the context of COVID-19: Perspectives from the United States and South Africa.

Lauren Franz, Jill Howard, Marisa Viljoen, Linmarie Sikich, Tara Chandrasekhar, Scott H Kollins, Lawrence Lee, Minkateko Ndlovu, Maura Sabatos-DeVito, Noleen Seris and 4 more

Abstract read
In one paragraph

Article in Autism : the international journal of research and practice, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

12 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
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  4. Enhanced Milieu Teaching in resource-constrained settings: Stakeholder-informed adaptation guidelines.The South African journal of communication disorders = Die Suid-Afrikaanse tydskrif vir Kommunikasieafwykings · 2024
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors.

Lauren FranzDuke University, USA.ORCID 0000-0003-4434-7500
Jill HowardDuke University, USA.
Marisa ViljoenCentre for Autism Research in Africa, Division of Child and Adolescent Psychiatry, University of Cape Town, South Africa.ORCID 0000-0001-5062-8654
Linmarie SikichDuke University, USA.
Tara ChandrasekharDuke University, USA.ORCID 0000-0001-5043-4286
Scott H KollinsDuke University, USA.
Lawrence LeeDuke University, USA.
Minkateko NdlovuCentre for Autism Research in Africa, Division of Child and Adolescent Psychiatry, University of Cape Town, South Africa.
Maura Sabatos-DeVitoDuke University, USA.
Noleen SerisCentre for Autism Research in Africa, Division of Child and Adolescent Psychiatry, University of Cape Town, South Africa.
Nokuthula ShabalalaCentre for Autism Research in Africa, Division of Child and Adolescent Psychiatry, University of Cape Town, South Africa.
Marina SpanosDuke University, USA.
Petrus J de VriesCentre for Autism Research in Africa, Division of Child and Adolescent Psychiatry, University of Cape Town, South Africa.
Geraldine DawsonDuke University, USA.

Funding

Recruitment and Assessment CoreP50HD093074 · NICHD · DUKE UNIVERSITY · PI Geraldine Dawson · 2017 to 2026
$27.6M
Pilot Study to Improve Access to Early Intervention for Autism in AfricaK01MH104370 · NIMH · DUKE UNIVERSITY · PI FRANZ, LAUREN · 2015 to 2019
$901k
Tailoring treatment targets for early autism intervention in AfricaR21MH120696 · NIMH · DUKE UNIVERSITY · PI FRANZ, LAUREN · 2019 to 2020
$362k
NICHD NIH HHS P50 HD093074NIMH NIH HHS K01 MH104370NIMH NIH HHS R21 MH120696
6 · The paper itself

Abstract

lay abstractCOVID-19 caused many autism spectrum disorder caregiver-coaching studies to move to telehealth. Telehealth can increase the diversity of people who take part in research. This matters because most autism spectrum disorder studies have included people who have resources, are White, and live in North America and Europe. When study participants are similar, it is hard to understand which interventions can help different types of people who live in different parts of the world. While telehealth may allow more people to take part in research, it needs to "fit" the local context and consider the "digital divide" because many people around the world have no access to computers and the Internet. This short report describes changes to two research studies that include caregiver coaching based on the Early Start Denver Model in the United States and South Africa. We describe how the local context, including technology and Internet access, guided the telehealth approach. By doing so, we highlight ways to make telehealth available to more people around the world. The pandemic can help us understand how telehealth can "fit" diverse places and support high-quality research. It is important that study changes are tracked and we assess how well the changes work. COVID-19 telehealth changes to caregiver coaching can result in new ways to reach more people around the world.

Indexed as

Autism Spectrum DisorderAutistic DisorderCOVID-19MentoringTelemedicineCaregiversChildHumansSARS-CoV-2South AfricaUnited Statesadaptationautism spectrum disordercaregiver coachingdigital dividetelehealth

Identifiers

PMID34098745
PMCPMC8651809

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.