Evidence map›Paper›PMID 34097249›Full record

ArticleJournal of cancer survivorship : research and practice2022

"I have to do things differently now, but I make it work"-young childhood cancer survivors' experiences of self-management in everyday living.

Marie H Larsen, Elna H Larsen, Ellen Ruud, Anneli Mellblom, Sunniva Helland, Hanne Cathrine Lie

Open access · hybridAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of cancer survivorship : research and practice, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
19citing papers in PubMed, 1 pooled it
5.3field-weighted citation impact, top 4% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

19 citing papers in PubMed, 1 synthesis or guideline pooled it, 29 citations in OpenAlex.

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  9. The successes experienced by collegiate athlete cancer survivors.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 3 institutions in 1 country.

Marie H LarsenDepartment of Behavioural Medicine, Institute of Basic Medical Sciences, Faculty of Medicine, University of Oslo (UIO), Postboks 1111, Blindern, 0317, Oslo, Norway. M.H.Larsen@medisin.uio.no.ORCID 0000-0001-9113-1062
Elna H LarsenDepartment of Behavioural Medicine, Institute of Basic Medical Sciences, Faculty of Medicine, University of Oslo (UIO), Postboks 1111, Blindern, 0317, Oslo, Norway.
Ellen RuudDepartment of Paediatric Haematology and Oncology, Division of Paediatric and Adolescent Medicine, Oslo University Hospital, Rikshospitalet, Postbox 4950, Nydalen, 0424, Oslo, Norway.
Anneli MellblomDepartment of Behavioural Medicine, Institute of Basic Medical Sciences, Faculty of Medicine, University of Oslo (UIO), Postboks 1111, Blindern, 0317, Oslo, Norway.
Sunniva HellandThe Children and Youth Clinic, Haukeland University Clinic, Jonas Lies vei 65, 5021, Bergen, Norway.
Hanne Cathrine LieDepartment of Behavioural Medicine, Institute of Basic Medical Sciences, Faculty of Medicine, University of Oslo (UIO), Postboks 1111, Blindern, 0317, Oslo, Norway.
University of Oslo · NOOslo University Hospital · NOHaukeland University Hospital · NO

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeLiving with late effects can affect young childhood cancer survivors' (CCSs) self-management (SM) abilities. In this study, we explored different approaches to SM of everyday life by young CCS.

methodsThis is a sub-study of a larger study on Physical Activity among Childhood Cancer Survivors (the PACCS study). We conducted individual interviews with 22 CCS aged 9 to 18 years who were at least 1 year off-treatment. An hybrid inductive-decductive thematic analysis was used.

resultsThree main themes were identified: (1) managing everyday life with fatigue, (2) building self-management competence, and (3) cancer survivor as part of identity. Late effects, especially fatigue, contributed to a perceived ability gap compared to peers, limiting participation in everyday activities. CCS developed new SM skills to overcome such challenges and pushed themselves physically and mentally to master and balance activities and rest to regain energy. CCS changed activities, adapted their expectations, or legitimized their apparent lack of SM skills to regain a sense of self-efficacy. Managing the impact of cancer on relationships with family and friends also required use of SM strategies.

conclusionsThe findings expand our currently limited knowledge of young CCS and SM skills they develop to manage everyday life after treatment completion. These, combined with ongoing support from family and peers, "make it work". IMPLICATIONS FOR CANCER SURVIVORS: The perspectives of young CCS illustrate their SM skills and support needs beyond transitioning off-treatment. Conceptualizing this within follow-up care may contribute to a feeling of mastery and increased satisfaction among CCS.

Indexed as

Cancer SurvivorsNeoplasmsSelf-ManagementAftercareChildDisease ProgressionFatigueHumansCancerChildhood cancer survivorsLate effectsOncologyQualitative interviewsSelf-management

Identifiers

PMID34097249
PMCPMC9300523
OpenAlexW3172859394

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.