ArticleInternational journal of population data science2019
Record linkage to enhance consented cohort and routinely collected health data from a UK birth cohort.
Article in International journal of population data science, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.
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The trial behind it
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Who cites it
9 citing papers in PubMed.
- Can routinely collected primary healthcare data be used to assess Aboriginal children's health and wellbeing longitudinally? A retrospective analysis of electronic medical records from an Aboriginal community-controlled health service in Central Australia.International journal of population data science · 2025Article
- Potential for advances in data linkage and data science to support injury prevention research.Injury prevention : journal of the International Society for Child and Adolescent Injury Prevention · 2024Article
- Maternal Mental Health and Children's Problem Behaviours: A Bi-directional Relationship?Research on child and adolescent psychopathology · 2023Article
- Comparing primary caregivers' reported injury data with routinely recorded injury data to assess predictors of childhood injury.BMC medical research methodology · 2023Article
- Record linkage as a vital key player for the COVID-19 syndemic - The call for legal harmonization to overcome research challenges.International journal of population data science · 2023Article
- Improving Cohort-Hospital Matching Accuracy through Standardization and Validation of Participant Identifiable Information.Children (Basel, Switzerland) · 2022Article
- Linking cohort data and Welsh routine health records to investigate children at risk of delayed primary vaccination.Vaccine · 2022Article
- Behavioural difficulties in early childhood and risk of adolescent injury.Archives of disease in childhood · 2020Article
- Five models for child and adolescent data linkage in the UK: a review of existing and proposed methods.Evidence-based mental health · 2020Review
Corrections and comments
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Authors and funding
12 authors.
Funding
Abstract
backgroundIn longitudinal health research, combining the richness of cohort data to the extensiveness of routine data opens up new possibilities, providing information not available from one data source alone. In this study, we set out to extend information from a longitudinal birth cohort study by linking to the cohort child's routine primary and secondary health care data. The resulting linked datasets will be used to examine health outcomes and patterns of health service utilisation for a set of common childhood health problems. We describe the experiences and challenges of acquiring and linking electronic health records for participants in a national longitudinal study, the UK Millennium Cohort Study (MCS).
methodWritten parental consent to link routine health data to survey responses of the MCS cohort member, mother and her partner was obtained for 90.7% of respondents when interviews took place at age seven years in the MCS. Probabilistic and deterministic linkage was used to link MCS cohort members to multiple routinely-collected health data sources in Wales and Scotland.
resultsOverall linkage rates for the consented population using country-specific health service data sources were 97.6% for Scotland and 99.9% for Wales. Linkage rates between different health data sources ranged from 65.3% to 99.6%. Issues relating to acquisition and linkage of data sources are discussed.
conclusionsLinking longitudinal cohort participants with routine data sources is becoming increasingly popular in population data research. Our results suggest that this is a valid method to enhance information held in both sources of data.
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Registered trials
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