Evidence map›Paper›PMID 34092661›Full record

ArticleJournal of pediatric rehabilitation medicine2021

Women with cerebral palsy: A qualitative study about their experiences with sexual and reproductive health education and services.

Susan Hayden Gray, Rachel Byrne, Sinead Christensen, David Williams, Molly Wylie, Eileen Fowler, Deborah Gaebler-Spira, Christina Marciniak, Laurie Glader

Open access · bronzeAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of pediatric rehabilitation medicine, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed, 1 pooled it
0.9field-weighted citation impact, top 28% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 1 synthesis or guideline pooled it, 9 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 5 institutions in 1 country.

Susan Hayden GrayUniversity of Virginia Teen and Young Adult Health Center, Department of Pediatrics, University of Virginia School of Medicine, Charlottesville, VA, USA.
Rachel ByrneCerebral Palsy Foundation, New York, NY, USA.
Sinead ChristensenBoston Children's Hospital, Boston, MA, USA.
David WilliamsDivision of Adolescent and Young Adult Medicine, Boston Children's Hospital and Harvard Medical School, Boston, MA, USA.
Molly WylieBoston Children's Hospital, Boston, MA, USA.
Eileen FowlerTarjan Center at UCLA, Center for Cerebral Palsy at UCLA, Department of Orthopaedic Surgery, University of California, Los Angeles, CA, USA.
Deborah Gaebler-SpiraDepartment of Physical Medicine and Rehabilitation, Department of Pediatrics, Northwestern University Feinberg School of Medicine, Chicago, IL, USA.
Christina MarciniakDepartment of Physical Medicine and Rehabilitation, Department of Pediatrics, Northwestern University Feinberg School of Medicine, Chicago, IL, USA.
Laurie GladerDivision of Complex Care, Comprehensive Cerebral Palsy Program, Nationwide Children's Hospital. The Ohio State University, Columbus, OH, USA.
Boston Children's Hospital · USNorthwestern University · USUnited Cerebral Palsy · USNationwide Children's Hospital · USUniversity of Virginia · US

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeTo explore the recalled experiences of women with CP regarding sexual health education and services they received.

methodsSemi-structured interviews and focus groups were conducted at four academic tertiary hospitals with 33 adult women with CP. Templates were used to ask about four key content domains: appointment planning (including planning for a gynecologic exam), accessibility of services, experiences with providers, and recommendations for improvement. Sessions were transcribed verbatim and analyzed to generate a coding dictionary. Blinded coding was carried out for each transcript, with duplicate coding used to confirm identified themes. Iterative analysis was used to identify and consolidate coding and key themes.

resultsSimilar barriers were discussed at the four sites, including lack of accessible exam tables, hospital staff unfamiliar with physical disabilities, and assumptions that women with CP are not sexually active. Many described the sexual education they received as brief, omitted, or mistimed. Self-advocacy was crucial, and recommended strategies ranged from pre-gynecologic exam medication to visit checklists.

conclusionReproductive health education for young women with CP is frequently inadequate. Medical professionals lack relevant knowledge and awareness; medical facilities lack necessary infrastructure. Recommendations for improvements are made.

Indexed as

Cerebral PalsyReproductive Health ServicesAdultFemaleFocus GroupsHealth Services AccessibilityHumansQualitative ResearchReproductive Healthcerebral palsyHealth educationreproductive healthsexual education

Identifiers

PMID34092661
PMCPMC8673520
OpenAlexW3170434622

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.