Evidence map›Paper›PMID 34091395›Full record

ArticleEvaluation and program planning2021

Utility of linking survey and registry data to evaluate interventions and policies to address disparities in breast cancer survivorship among young women.

Sujha Subramanian, Madeleine Jones, Florence K L Tangka, Patrick Edwards, Tim Flanigan, Jenya Kaganova, Kevin Smith, Temeika Fairley, Nikki A Hawkins, Juan L Rodriguez and 2 more

Open access · greenAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Evaluation and program planning, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact, top 91% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed, 0 citations in OpenAlex.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors at 2 institutions in 1 country.

Sujha SubramanianRTI International, 307 Waverly Oaks Road, Waltham, MA, 0245, USA. Electronic address: ssubramanian@rti.org.
Madeleine JonesRTI International, 307 Waverly Oaks Road, Waltham, MA, 0245, USA.
Florence K L TangkaCenters for Disease Control and Prevention, 1600 Clifton Rd., Atlanta, GA, USA.
Patrick EdwardsRTI International, 307 Waverly Oaks Road, Waltham, MA, 0245, USA.
Tim FlaniganRTI International, 307 Waverly Oaks Road, Waltham, MA, 0245, USA.
Jenya KaganovaRTI International, 307 Waverly Oaks Road, Waltham, MA, 0245, USA.
Kevin SmithRTI International, 307 Waverly Oaks Road, Waltham, MA, 0245, USA.
Temeika FairleyCenters for Disease Control and Prevention, 1600 Clifton Rd., Atlanta, GA, USA.
Nikki A HawkinsCenters for Disease Control and Prevention, 1600 Clifton Rd., Atlanta, GA, USA.
Juan L RodriguezCenters for Disease Control and Prevention, 1600 Clifton Rd., Atlanta, GA, USA.
Gery P GuyCenters for Disease Control and Prevention, 1600 Clifton Rd., Atlanta, GA, USA.
Cheryll C ThomasCenters for Disease Control and Prevention, 1600 Clifton Rd., Atlanta, GA, USA.
Centers for Disease Control and Prevention · USRTI International · US

Funding

Intramural CDC HHS CC999999
6 · The paper itself

Abstract

purposeThere is limited research linking data sources to evaluate the multifactorial impacts on the quality of treatment received and financial burden among young women with breast cancer. To address this gap and support future evaluation efforts, we examined the utility of combining patient survey and cancer registry data. PATIENT AND

methodsWe administered a survey to women, aged 18-39 years, with breast cancer from four U.S. states. We conducted a systematic response-rate analysis and evaluated differences between racial groups. Survey responses were linked with cancer registry data to assess whether surveys could reliably supplement registry data.

resultsA total of 830 women completed the survey for a response rate of 28.4 %. Blacks and Asian/Pacific Islanders were half as likely to respond as white women. Concordance between survey and registry data was high for demographic variables (Cohen's kappa [k]: 0.879 to 0.949), moderate to high for treatments received (k: 0.467 to 0.854), and low for hormone receptor status (k: 0.167 to 0.553). Survey items related to insurance status, employment, and symptoms revealed racial differences.

conclusionCancer registry data, supplemented by patient surveys, can provide a broader understanding of the quality of care and financial impacts of breast cancer among young women.

Indexed as

Breast NeoplasmsFemaleHealthcare DisparitiesHumansNative Hawaiian or Pacific IslanderPolicyProgram EvaluationRegistriesSurvivorshipBreast cancerInsurance statusLate-stage diagnosisMultifactorial researchRace/ethnicityState cancer registrySurvey data

Identifiers

PMID34091395
PMCPMC8533048
OpenAlexW3172256885

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.