ArticlePediatric rheumatology online journal2021
Development and validation of the RACER (Readiness for Adult Care in Rheumatology) transition instrument in youth with juvenile idiopathic arthritis.
Article in Pediatric rheumatology online journal, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers, 1 of them a synthesis that pooled it.
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The trial behind it
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Who cites it
8 citing papers in PubMed, 1 synthesis or guideline pooled it, 11 citations in OpenAlex.
- Addressing the unmet needs of transitional care in juvenile idiopathic arthritis.Rheumatology (Oxford, England) · 2024Pooled it
- Impact of Biologic Therapy, School Success, Parent's Education and Socioeconomic Status on Transition Readiness in Adolescents with Juvenile Idiopathic Arthritis and Their Parents.Indian pediatrics · 2025Article
- A Virtual Self-Management Intervention for Adolescents With Juvenile Idiopathic Arthritis: Protocol for the VISTA-JIA Randomized Controlled Trial.JMIR research protocols · 2025Article
- Transition-related outcomes among a cohort of patients with juvenile idiopathic arthritis.Clinical rheumatology · 2025Review
- Transition clinics in pediatric rheumatology in Colombia: reflection on a necessary shortcomings.Advances in rheumatology (London, England) · 2025Review
- Consensus on transition care for juvenile idiopathic arthritis: a Delphi study with youth, caregivers, and health professionals.Pediatric rheumatology online journal · 2024Article
- Transition readiness measures for adolescents with chronic illness: A scoping review of new measures.Health care transitions · 2023Article
- Transition readiness in adolescents with juvenile idiopathic arthritis and their parents: Our single-center experience.Archives of rheumatology · 2022Article
Corrections and comments
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Authors and funding
13 authors at 11 institutions in 1 country.
Funding
Abstract
backgroundCurrent evidence suggests that many adolescents with juvenile idiopathic arthritis (JIA) do not successfully transfer to adult care, which can result in adverse health outcomes. Although a growing number of clinical programs have been designed to support healthcare transition, there is a lack of psychometrically sound instruments to evaluate their impact on development of transition-related knowledge and skills in youth with JIA. The purpose of this study was to develop and validate RACER (Readiness for Adult Care in Rheumatology), a self-administered instrument designed to measure stages of readiness for key transition-related skills in adolescents with JIA.
methodsA phased approach was used to develop and evaluate the validity and reliability of RACER. Phase 1 A was a consensus conference with 19 key stakeholders to inform instrument domains and items. Phase 1B determined initial content validity using a sample of 30 adolescents with JIA and 15 clinical and research experts. Finally, Phase 2 was a prospective cohort study with repeated measures to evaluate the internal consistency, test-retest reliability, construct validity and responsiveness of the instrument within a sample of adolescents with JIA.
resultsIn Phase 1 A, initial item generation yielded a total of 242 items across six domains from the consensus conference, which was subsequently reduced to a 32-item instrument. Phase 1B established the content validity of the instrument in adolescents with JIA. In the Phase 2 study, with a sample of 96 adolescents, the RACER instrument exhibited good internal consistency in five of its six subscales (Cronbach's α > 0.7), and strong test-retest reliability between the first two administrations (ICC = 0.83). It also showed robust convergent validity by highly correlating with measures of self-management (SMSAG, rho = 0.73) and transition (TRANSITION-Q, rho = 0.76). The RACER was not correlated with unrelated measures (discriminant validity; PedsQL, rho = 0.14). The RACER scores increased significantly over time as expected, supporting measure responsiveness.
conclusionsThe RACER is a reliable and valid instrument which is sensitive to change for assessing transition readiness in adolescents with JIA.
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