SynthesisEuropean child & adolescent psychiatry2022
User involvement in adolescents' mental healthcare: a systematic review.
Synthesis in European child & adolescent psychiatry, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers, 5 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
27 citing papers in PubMed, 5 syntheses or guidelines pooled it.
- Tools for dementia disclosure: a systematic review of -family caregivers' perspectives and experiences.The Gerontologist · 2026Pooled it
- Experiences of Care for Adolescents With Mental Health Difficulties in Acute Paediatric Services: A Systematic Review.Journal of clinical nursing · 2025Pooled it
- Adolescents' involvement in mental health treatment and service design: a systematic review.BMC health services research · 2024Pooled it
- Involvement of children and young people in the conduct of health research: A rapid umbrella review.Health expectations : an international journal of public participation in health care and health policy · 2024Pooled it
- Elements in Mental Health Interventions Associated with Effects on Emotion Regulation in Adolescents: A Meta-Analysis.Administration and policy in mental health · 2022Pooled it
- Advancing in Personalization of Psychological, Indicated Preventive Interventions: A Randomized Controlled Trial in Adolescents at High-Risk of Developing Emotional Disorders.Child psychiatry and human development · 2026Article
- Youth Participation, Agency and Well-Being in Hospital-Linked Contexts: Evidence From the KIDS Programme.Child: care, health and development · 2026Article
- Mental Health Services for Adolescents With Status as Asylum Seekers or Refugees: A Qualitative Study of Healthcare Professionals' Perspectives.Transcultural psychiatry · 2026Article
- Evaluation of a pro-recovery training intervention (REFOCUS-RETAFORM) in specialist mental health services across France: stepped-wedge cluster randomised controlled trial protocol.BMC psychiatry · 2025Article
- Collaboration for Recovery: Expert Mental Health Worker Experiences with the Recovery Assessment Scale - Domain and Stages (RAS-DS).Community mental health journal · 2025Article
- Cultural impacts on shared decision-making: A cross-European study of psychiatrist preferences in 38 countries.European psychiatry : the journal of the Association of European Psychiatrists · 2025Article
- Perspectives of healthcare professionals on cross-sectoral collaboration between mental health centers and municipalities: A qualitative study.The International journal of social psychiatry · 2025Article
- Conversational AI in Pediatric Mental Health: A Narrative Review.Children (Basel, Switzerland) · 2025Review
- Determinants of young People's gender norm attitudes related to rights and equity in Southeast Nigeria.Archives of public health = Archives belges de sante publique · 2025Article
- The outpatient experience questionnaire for child and adolescent mental health services: reliability and validity following a nationwide survey.Journal of patient-reported outcomes · 2025Article
- Playing the Admission Game: Young People and Their Parents Negotiating Access or Discharge to Adolescent Inpatient Mental Health Services.Journal of child and adolescent psychiatric nursing : official publication of the Association of Child and Adolescent Psychiatric Nurses, Inc · 2025Article
- Practitioner Review: Treatments for young people who self-harm - challenges and recommendations for research and clinical practice.Journal of child psychology and psychiatry, and allied disciplines · 2025Review
- Struggling to be heard: A scoping review of user participation in ADHD mental healthcare for children and adolescents.Scandinavian journal of child and adolescent psychiatry and psychology · 2025Review
- What's it gonna take? Lessons learned for youth-friendly mental health services research.Frontiers in health services · 2025Article
- Efficacy pilot study of the DSM-5 Cultural Formulation Interview in a specialized mental healthcare inpatient unit for adolescents in Norway.Frontiers in psychiatry · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
More than one out of ten adolescents suffer from mental illness at any given time. Still, there is limited knowledge about their involvement in mental healthcare. Adolescents have the right to be involved in decisions affecting their healthcare, but limited research focuses on their engagement and decision-making. Therefore, this systematic review aims to explore the existing experiences with, the effectiveness of, and safety issues associated with user involvement for adolescents' mental healthcare at the individual and organizational level. A systematic literature review on user involvement in adolescents' mental healthcare was carried out. A protocol pre-determined the eligibility criteria and search strategies, and established guidelines were used for data extraction, critical appraisal, and reporting of results. Quantitative studies were analysed individually due to heterogeneity of the studies, while qualitative studies were analysed using thematic synthesis. A total of 31 studies were included in the review. The experiences with user involvement were reported in 24 studies with three themes at the individual level: unilateral clinician control versus collaborative relationship, capacity and support for active involvement, the right to be involved; and two themes at the organizational level: involvement outcomes relevant to adolescents' needs, conditions for optimal involvement. The effectiveness of user involvement was reported in seven studies documenting fragmented evidence related to different support structures to facilitate adolescents' involvement. The safety associated with user involvement was not reported in any studies, yet a few examples related to potential risks associated with involvement of adolescents in decision-making and as consultants were mentioned.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.