ArticlePediatric blood & cancer2021
A scoping review of transition interventions for young adults with sickle cell disease.
Article in Pediatric blood & cancer, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 13 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
13 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Self-management interventions for children and young people with sickle cell disease: A systematic review.Health expectations : an international journal of public participation in health care and health policy · 2023Pooled it
- Effectiveness of health care transition interventions for sickle cell disease.Blood advances · 2026Article
- The Community Health Workers and Mobile Health for Emerging Adults Transitioning Sickle Cell Disease Care (COMETS) Trial: Protocol for a Randomized Controlled Trial.JMIR research protocols · 2025Article
- Community-engaged research in psychological interventions for pediatric sickle cell disease: a scoping review.Journal of pediatric psychology · 2025Article
- Fostering a healthier generation of children with sickle cell disease through advancements in care.Pediatric research · 2025Review
- Love vs. Risk: Women with Sickle Cell Disease Face Reproductive Decision-Making Dilemmas.International journal of environmental research and public health · 2025Article
- Initial outcomes in a sickle cell disease transition clinic.Health care transitions · 2024Article
- Developing a transition workshop for adolescents with sickle cell disease.Health care transitions · 2024Article
- Development of the iManage SCD mobile health application for transition.Health care transitions · 2024Article
- Training young adults as community health workers specializing in pediatric to adult health care transition to support emerging adults with sickle cell disease.Health care transitions · 2024Article
- Empowering patients with sickle cell anemia and their families through innovative educational methods.EJHaem · 2023Article
- Transition for Adolescents and Young Adults With Sickle Cell Disease in a US Midwest Urban Center: A Multilevel Perspective on Barriers, Facilitators, and Future Directions.Journal of pediatric hematology/oncology · 2022Article
- Challenges Faced by Nurses in Transitioning Pediatric Sickle Cell Disease Patients to Adult Care.SAGE open nursingArticle
Corrections and comments
- Erratum issuedCorrigendum.2022
Authors and funding
5 authors.
Funding
Abstract
Standardized programming for individuals with sickle cell disease (SCD) transitioning from pediatric to adult-centered care does not currently exist, resulting in high rates of mortality and morbidity. This scoping review examines and evaluates the current literature on SCD transition programs and interventions. Eligible studies described an existing program for individuals with SCD aged 12-29 years preparing to transition. The Evidence Project risk-of-bias tool was used to assess article quality. We identified 30 eligible articles, of which, only two were randomized controlled trials. Many studies have incomplete reports of feasibility information, such as completion rates, patient characteristics, and attrition; all studies were limited to a single institution; and most studies were rated high for risk of bias. Progress has been made in designing and gathering initial evaluation data for SCD transition programs; however, there is a need for higher quality studies, consistent assessment, and better dissemination of programs.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.