ArticleNeuropsychological rehabilitation2022
The impact of prolonged disorders of consciousness on family caregivers' quality of life - A scoping review.
Article in Neuropsychological rehabilitation, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
15 citing papers in PubMed, 1 synthesis or guideline pooled it, 21 citations in OpenAlex.
- Prediction models for functional outcomes in prolonged disorders of consciousness: a systematic review and meta-analysis.Journal of neuroengineering and rehabilitation · 2025Pooled it
- Integrating task-state electroencephalography and motor function for intelligent assessment of recovery status from prolonged disorders of consciousness.BMC neurology · 2026Article
- Vegetative state in two Italian residential facilities: study of prognosis for subjects and related caregivers.Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology · 2025Observational
- The cost of rehabilitation after critical illness: a comparison of hospitalization costs for traumatic brain injury and non-traumatic brain injury patients with disorders of consciousness.Frontiers in public health · 2025Article
- Family caregivers' sense-making of the results of functional neurodiagnostics for patients with Prolonged Disorders of Consciousness.Neuropsychological rehabilitation · 2024Article
- Validity and reliability of a questionnaire assessing the knowledge, attitude, and awareness in the informal caregivers of comatose patients: An observational study.Current journal of neurology · 2024Article
- Mood assessments of family caregivers of patients with severe brain injury in China.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024Article
- Disorders of Consciousness Rehabilitation: Ethical Dimensions and Epistemic Dilemmas.Physical medicine and rehabilitation clinics of North America · 2024Review
- Research considerations for prospective studies of patients with coma and disorders of consciousness.Brain communications · 2024Review
- Needs and Quality of Life of Caregivers of Patients with Prolonged Disorders of Consciousness.Brain sciences · 2023Article
- Mapping topography and network of brain injury in patients with disorders of consciousness.Frontiers in neurology · 2023Article
- Neuroprognostication: a conceptual framework.Nature reviews. Neurology · 2022Review
- Detection of residual consciousness using EEG indicators related to rectal perception: protocol for a diagnostic accuracy study.Frontiers in neurologyArticle
- Neuromodulation for pediatric disorders of consciousness: bridging the gap between adult evidence and developmental reality.Frontiers in neurologyReview
- Pain perception and attitudes toward life-sustaining treatment in pediatric patients with disorders of consciousness: a survey of Chinese healthcare professionals.Frontiers in neurologyArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 1 institution in 1 country.
Funding
Abstract
Providing long-term care for a family member diagnosed with a Prolonged Disorder of Consciousness (PDoC) can have a significant impact on the lives of family caregivers. This scoping review aimed to explore the current literature investigating the impact of caring for a person in a PDoC on family caregivers' Quality of Life (QOL), as categorized using the WHOQOL-BREF model. We observed that articles employing quantitative methodologies mostly reported QOL outcomes relating to negative feelings, thinking, learning, memory and concentration, and personal relationships. Articles employing qualitative methodologies mostly reported QOL outcomes relating to negative feelings, personal relationships, positive feelings, and health and social care accessibility and quality. A descriptive content analysis of the QOL outcomes highlighted the limitations of the current literature base in representing the complexities of the experiences of family members providing care for a person in a PDoC. To provide valuable and personalized support to caregivers, without pathologizing or medicalizing their distress, it is vital to characterize more accurately the contextual subtleties of each person's situation.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.