ArticleCardiology in the young2021
Parent mental health and family functioning following diagnosis of CHD: a research agenda and recommendations from the Cardiac Neurodevelopmental Outcome Collaborative.
Article in Cardiology in the young, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 28 papers, 2 of them syntheses that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
28 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- A systematic review of early motor interventions for infants with congenital heart disease and open-heart surgery.Systematic reviews · 2023Pooled it
- Systematic Review of Instruments Assessing Psychosocial Adaptation and Outcomes Among Families of Children With Congenital Heart Disease.Journal of pediatric psychology · 2023Pooled it
- Examining the Impact of Assistive Technology on Psychological Health, Family Education, and Curriculum Research in Japan: Insights from Artificial Intelligence.Journal of autism and developmental disorders · 2024Trial
- Early Childhood Emotional, Relational, and Stress-Related Outcomes Following Infant Cardiac Surgery.Developmental psychobiology · 2026Article
- Resilience in families of children with dextro-transposition of the great arteries.Journal of perinatology : official journal of the California Perinatal Association · 2026Article
- Parental perspectives on neurodevelopmental risk communication and care coordination in congenital heart disease: a nationwide survey in France.European journal of pediatrics · 2026Article
- Connection after correction: Parent-child relationships following early cardiac surgery.Infant mental health journal · 2026Article
- Stress, coping, protective factors, and quality of life in parents of infants with CHD: associations with state anxiety.Cardiology in the young · 2026Article
- Screening of Pediatric Patients at Cardiology Clinic Identifies High Prevalence of Food Insecurity.International journal of environmental research and public health · 2026Article
- Association between the gut microbiome and neurodevelopmental outcomes in infants with congenital heart disease: A prospective cohort study.JPEN. Journal of parenteral and enteral nutrition · 2026Article
- Neurocognitive and Psychological Interventions for Adults With Congenital Heart Disease: A Consensus Statement From the Adult Congenital Heart Disease/Neuro 2024 Conference.Journal of the American Heart Association · 2026Article
- Family resilience and its related factors among parents of children with congenital heart disease in China: a latent profile analysis.BMC public health · 2026Article
- Siblings of young children with congenital heart disease: parent perspectives from a crowdsourcing study.Journal of pediatric psychology · 2026Article
- Prenatal Diagnosis and Decision-Making in Severe Pulmonary Stenosis With Coronary Sinusoids: A Case Report.Clinical case reports · 2025Article
- Translation and validation of the Swahili pediatric quality of life family impact module for caregivers of children with congenital heart disease.Scientific reports · 2025Article
- Mental Health Care for Children with Heart Disease and Their Families: Practical Approaches and Considerations for the Pediatric and Pediatric Cardiology Clinician.Pediatric cardiology · 2025Review
- The implementation of EMI-Heart, a family-tailored early motor intervention in infants with complex congenital heart disease, in practice: a feasibility RCT.Pilot and feasibility studies · 2024Article
- Salivary Diurnal Cortisol Predicts Post-Traumatic Stress Symptoms in Parents of Infants With Congenital Heart Disease.Biological research for nursing · 2024Article
- Nurse-guided Mobile Health Care Program to Reduce Emotional Distress Experienced by Parents of Infants Prenatally Diagnosed with Critical Congenital Heart Disease: A Pilot Study.Progress in pediatric cardiology · 2024Article
- An mHealth, patient engagement approach to understand and address parents' mental health and caregiving needs after prenatal diagnosis of critical congenital heart disease.PEC innovation · 2023Article
Corrections and comments
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Authors and funding
13 authors.
Funding
Abstract
Diagnosis of CHD substantially affects parent mental health and family functioning, thereby influencing child neurodevelopmental and psychosocial outcomes. Recognition of the need to proactively support parent mental health and family functioning following cardiac diagnosis to promote psychosocial adaptation has increased substantially over recent years. However, significant gaps in knowledge remain and families continue to report critical unmet psychosocial needs. The Parent Mental Health and Family Functioning Working Group of the Cardiac Neurodevelopmental Outcome Collaborative was formed in 2018 through support from an R13 grant from the National Heart, Lung, and Blood Institute to identify significant knowledge gaps related to parent mental health and family functioning, as well as critical questions that must be answered to further knowledge, policy, care, and outcomes. Conceptually driven investigations are needed to identify parent mental health and family functioning factors with the strongest influence on child outcomes, to obtain a deeper understanding of the biomarkers associated with these factors, and to better understand how parent mental health and family functioning influence child outcomes over time. Investigations are also needed to develop, test, and implement sustainable models of mental health screening and assessment, as well as effective interventions to optimise parent mental health and family functioning to promote psychosocial adaptation. The critical questions and investigations outlined in this paper provide a roadmap for future research to close gaps in knowledge, improve care, and promote positive outcomes for families of children with CHD.
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