ArticlePatient preference and adherence2021
Caregivers of Patients with Heart Failure: Burden and the Determinants of Health-Related Quality of Life.
Article in Patient preference and adherence, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 2 of them syntheses that pooled it.
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Who cites it
20 citing papers in PubMed, 2 syntheses or guidelines pooled it, 43 citations in OpenAlex.
- Nursing interventions to enhance self-care in heart failure: a systematic review interpreted through the COM-B model.Systematic reviews · 2026Pooled it
- Caregiver burden in informal caregivers of cardiac patients: a mixed-methods systematic review.BMC psychology · 2026Pooled it
- Patient-Reported Experience of Digital Remote Monitoring for Chronic Heart Failure Across Experimental and Routine Reimbursement Periods in France: Repeated Cross-Sectional Surveys of 1378 Users.Healthcare (Basel, Switzerland) · 2026Article
- Caregiver Burden, Social Support, and Depressive Symptoms Among Caregivers of Patients With Heart Failure.The journal of nursing research : JNR · 2026Article
- Learning Needs in Heart Failure Care Across Patients, Caregivers, and Healthcare Professionals: A Scoping Review of Asian Studies.Patient preference and adherence · 2026Review
- Quality of Life, Anxiety, and Depression in Caregivers of Community-Dwelling Heart Failure Patients.Healthcare (Basel, Switzerland) · 2025Article
- Quality of Life and Experience of Patients with Heart Failure with Preserved Ejection Fraction and Their Caregivers.Journal of clinical medicine · 2025Article
- Quality of Life in Heart Failure Patients: The Effect of Anxiety and Depression (Patient-Caregiver) and Caregivers' Quality of Life.Journal of cardiovascular development and disease · 2025Article
- Article
- Language Validation and Cultural Adaptation of the Italian Version of the Family Caregiver Quality of Life Scale.Nursing reports (Pavia, Italy) · 2024Article
- Exploring the Influence of Contextual Factors and the Caregiving Process on Caregiver Burden and Quality of Life Outcomes of Heart Failure (HF) Dyads after a Hospital Discharge: A Mixed-Methods Study.Journal of clinical medicine · 2024Article
- Article
- The effect of emotional freedom techniques (EFT) on anxiety and caregiver burden of family caregivers of patients with heart failure: A quasi-experimental study.Journal of education and health promotion · 2024Article
- Measurement Properties of the 15-Item Singapore Caregiver Quality of Life Scale (SCQOLS-15) in Family Caregivers of Patients with Heart Diseases.The patient · 2023Observational
- A Mixed-Methods Feasibility Study: Eliciting ICU Experiences and Measuring Outcomes of Family Caregivers of Patients Who Have Undergone Hematopoietic Stem Cell Transplantation.Journal of family nursing · 2023Article
- Alignment of Doctors' Understanding of Treatment Burden Priorities and Chronic Heart Failure Patients' Experiences: A Nominal Group Technique Consultation.Patient preference and adherence · 2023Article
- Needs and problems related to sociodemographic factors of informal caregiving of people with heart failure: A mixed methods study in three European countries.Journal of advanced nursing · 2022Article
- Quality of Life among Caregivers of Patients Diagnosed with Major Chronic Disease during COVID-19 in Saudi Arabia.Healthcare (Basel, Switzerland) · 2022Article
- Informal Caregiving in Patients With Atrial Fibrillation and Multimorbidity: A Cross-European Study of Caregiver Burden, Health-Related Quality of Life, and Caregiver Engagement.The Journal of cardiovascular nursingArticle
- Caregiving experiences of older family caregivers of persons with heart failure: A mixed methods study.Geriatric nursing (New York, N.Y.)Article
Corrections and comments
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Authors and funding
8 authors at 2 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeTo assess the burden among caregivers of patients with heart failure (HF) with left ventricular ejection fraction (LVEF) ≤60%. The burden by New York Heart Association (NYHA) functional class was also characterized. PATIENTS AND
methodsA cross-sectional study was conducted in France, Germany, Italy, Spain, and UK from June to November 2019. Patient record forms were completed by 257 cardiologists and 158 general practitioners for consecutive HF patients. Caregivers who accompanied the patient to their consultation completed a caregiver self-completion survey voluntarily, which included the Family Caregiver Quality of Life Questionnaire (FAMQOL) and 5-level 5-dimension EuroQol questionnaire (EQ-5D-5L).
resultsWe analyzed 361 caregivers of patients with HF (NYHA class I, n=41; II, n=212; III IV, n=108). Mean age of caregivers was 58.8 years (NYHA I/II/III-IV: 59.1/60.8/54.6 years; p=0.0029), with majority being females (73.1%). Caregivers spent on average 19.8 hours/week caring for a HF patient, which increased with increase in NYHA class (I/II/III-IV: 11.8/18.1/25.9 hours/week; p=0.0094). Caregivers (24.1%) reported providing emotional support/encouragement to patients as the most troublesome/inconvenient caregiving activity (no significant difference across NYHA class). Nearly one-third of caregivers experienced stress (NYHA I/II/III-IV: 17.1%/28.8%/40.7%; p=0.0111) and anxiety (26.8%/24.1%/39.8%; p=0.0127) due to caregiving burden. The overall FAMQOL mean score decreased significantly (poorer QoL) with increase in NYHA class (I/II/III-IV: 58.1/56.3/52.2; p=0.0069). A trend of decreasing scores with increasing NYHA class was observed across physical, emotional, and social domains (each p≤0.012).
conclusionCaregivers of HF patients with LVEF ≤60% experienced a significant burden, which was higher among caregivers of patients with more severe and symptomatic disease.
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