ArticleBMC geriatrics2021
A comparison of spouse and non-spouse carers of people with dementia: a descriptive analysis of Swedish national survey data.
Article in BMC geriatrics, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
23 citing papers in PubMed, 3 syntheses or guidelines pooled it, 45 citations in OpenAlex.
- Interventions to support young carers/supporters of people living with dementia: a mixed methods systematic review.International journal of qualitative studies on health and well-being · 2026Pooled it
- Empathy and Psychological Outcomes in Informal Caregivers of Community-Dwelling Older Adults: A Systematic Review and Meta-Analysis.The journals of gerontology. Series B, Psychological sciences and social sciences · 2025Pooled it
- Factors associated with grief in informal carers of people living with Motor Neuron Disease: A mixed methods systematic review.Death studies · 2024Pooled it
- Exploring the experiences and needs in everyday life of spouse carers of persons with dementia.International journal of qualitative studies on health and well-being · 2026Article
- Experiences of Formal and Informal Support Among Adult-Daughter Caregivers of People With Dementia in Sweden: A Qualitative Study.Dementia (London, England) · 2026Article
- Living well with dementia: a qualitative interview study on family caregivers' call for more person- and family-centered dementia support.BMC geriatrics · 2025Article
- Professional Support Through a Tailor-Made Mobile App to Reduce Stress and Depressive Symptoms Among Family Caregivers of People With Dementia: Mixed Methods Pilot Study.JMIR formative research · 2025Article
- Navigating Everyday as Partners to Persons With Early Dementia: A Scoping Review.Scandinavian journal of caring sciences · 2025Article
- Quality of life of informal caregivers 50 years old and older in Spain by household living status: a descriptive study.Scientific reports · 2025Observational
- "I'm his brain": A qualitative study of care partners supporting the inner strength of persons living with mild cognitive impairment.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Article
- Latent profile analysis of depression in older adults spouse caregivers.Frontiers in public health · 2025Article
- Perceived Importance of Types and Characteristics of Support to Informal Caregivers among Spouse Caregivers of Persons with Dementia in Sweden: A Cross-Sectional Questionnaire-Based Study.International journal of environmental research and public health · 2024Article
- Young Spouses' Experiences of Having a Partner With Heart Disease and Adolescents Living at Home.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Article
- The transition of care from farm-based daycare for people with dementia: The perspective of next of kin.International journal of qualitative studies on health and well-being · 2023Article
- Predictors of long-term care use - informal home care recipients versus private and public facilities residents in Poland.BMC geriatrics · 2023Article
- An Exploratory Study of Nutrition Knowledge and Challenges Faced by Informal Carers of Community-Dwelling People with Dementia: Online Survey and Thematic Analysis.Geriatrics (Basel, Switzerland) · 2023Article
- A shared decision-making model about care for people with severe dementia: A qualitative study based on nutrition and hydration decisions in acute hospitals.International journal of geriatric psychiatry · 2023Article
- Variability in perceived burden and health trajectories among older caregivers: a population-based study in Sweden.Journal of epidemiology and community health · 2023Article
- Elderly Caregivers' Awareness of Caregiving Health Risks.Healthcare (Basel, Switzerland) · 2022Article
Corrections and comments
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Authors and funding
9 authors at 5 institutions in 2 countries.
Funding
Abstract
backgroundBeing an informal carer of a person with dementia (PwD) can have a negative effect on the carer's health and quality of life, and spouse carers have been found to be especially vulnerable. Yet relatively little is known about the care provided and support received by spouse carers. This study compares spouse carers to other informal carers of PwDs regarding their care provision, the support received and the psychosocial impact of care.
methodsThe study was a cross-sectional questionnaire-based survey of a stratified random sample of the Swedish population aged 18 or over. The questionnaire explored how much care the respondent provided, the support received, and the psychosocial impact of providing care. Of 30,009 people sampled, 11,168 (37.7 %) responded, of whom 330 (2.95 %) were informal carers of a PwD.
resultsIn comparison to non-spouse carers, spouse carers provided more care more frequently, did so with less support from family or the local authority, while more frequently experiencing negative impacts on their social life and psychological and physical health. Spouse carers also received more carer support and more frequently experienced a closeness in their relationship with the care-recipient.
conclusionsSpouse carers of PwD differed from non-spouse carers on virtually all aspects of their care situation. Policy and practice must be more sensitive to how the carer-care-recipient relationship shapes the experience of care, so that support is based on an understanding of the individual carer's actual needs and preferences rather than on preconceptions drawn from a generalised support model.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.