ArticleJournal of intellectual disability research : JIDR2021
Experiences of mothers caring for a child with an intellectual disability during the COVID-19 pandemic in the Netherlands.
Article in Journal of intellectual disability research : JIDR, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers.
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Who cites it
20 citing papers in PubMed, 48 citations in OpenAlex.
- A study of the adaptation processes of individuals with intellectual disabilities and their mothers to COVID-19 restrictions.Journal of intellectual disabilities : JOID · 2024Article
- School Attendance Problems Among Children with Neurodevelopmental Conditions One year Following the Start of the COVID-19 Pandemic.Journal of autism and developmental disorders · 2024Article
- Effectiveness of Online Programmes for Family Carers of People with Intellectual Disabilities: Systematic Review of the International Evidence Base.Healthcare (Basel, Switzerland) · 2024Review
- User Requirements and Perceptions of a Sensor System for Early Stress Detection in People With Dementia and People With Intellectual Disability: Qualitative Study.JMIR formative research · 2024Article
- Hospitalisation and mortality among privately insured individuals with COVID-19 in the United States: The role of intellectual disabilities and Neurogenetic disorders.Journal of intellectual disability research : JIDR · 2024Article
- The Impact of the COVID-19 Pandemic on Individuals with Down Syndrome: A Croatian Survey.Balkan journal of medical genetics : BJMG · 2024Article
- Experiences of people with intellectual disabilities during the COVID-19 pandemic. A thematic synthesis.International journal of developmental disabilities · 2024Article
- Experiences of UK and Irish family carers of people with profound and multiple intellectual disabilities during the COVID-19 pandemic.BMC public health · 2023Article
- An update of the reported effects of the COVID-19 pandemic on person with intellectual disability and their carers: a scoping review.Annals of medicine · 2023Article
- Experiences of parents of children with rare neurogenetic conditions during the COVID-19 pandemic: an interpretative phenomenological analysis.BMC psychology · 2023Article
- Vulnerable but stronger together: An interpretative phenomenological analysis of the experiences of mothers of young adults with profound intellectual and multiple disabilities during the COVID-19 pandemic.Journal of intellectual & developmental disability · 2023Article
- Disabled people's experiences accessing healthcare services during the COVID-19 pandemic: a scoping review.BMC health services research · 2023Article
- 'I cannot be missed yet': A qualitative study of carers of family members with an intellectual disability about long-term care planning during the COVID-19 pandemic.Journal of applied research in intellectual disabilities : JARID · 2023Article
- Physical activity, sedentary behaviour and screen time among youths with Down syndrome during the COVID-19 pandemic.Journal of intellectual disability research : JIDR · 2022Article
- Key learnings from COVID-19 to sustain quality of life for families of individuals with IDD.Journal of policy and practice in intellectual disabilities · 2022Article
- Impact of a Remotely Supervised Motor Rehabilitation Program on Maternal Well-Being During the COVID-19 Italian Lockdown.Frontiers in psychology · 2022Review
- Homeward bound: Exploring the motives of mothers who brought their offspring with intellectual disabilities home from residential settings during the COVID-19 pandemic.Journal of applied research in intellectual disabilities : JARID · 2022Article
- COVID-19 IDD: Findings from a global survey exploring family members' and paid staff's perceptions of the impact of COVID-19 on individuals with intellectual and developmental disabilities (IDD) and their caregivers.HRB open research · 2022Article
- Adverse Effects of the COVID-19 Pandemic on Movement and Play Behaviours of Children and Youth Living with Disabilities: Findings from the National Physical Activity Measurement (NPAM) Study.International journal of environmental research and public health · 2021Article
- Experiences of mothers caring for a child with an intellectual disability during the COVID-19 pandemic in the Netherlands.Journal of intellectual disability research : JIDR · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 2 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundDuring the first COVID-19 lockdown period, various restrictions led to diminished access to both educational and professional support systems for children with an intellectual disability and their families. The aim of this study was to explore the experiences and needs of parents caring for a child with an intellectual disability during the first lockdown period in the Netherlands.
methodFive mothers caring for a child with an intellectual disability participated in this qualitative study. The participants were interviewed using a semi-structured interview guide. The interviews lasted between 26 and 48 min. The interview recordings were transcribed verbatim, and the transcripts were analysed thematically.
resultsThree overarching themes emerged: (1) We need to stay healthy, which centres on the mother's urge to protect their child's well-being; (2) We make it work, which provides insight into how the mothers were handling the drastic changes in their family; and (3) My child's and family's place in the world, which focuses on the mothers' experienced position in the world around them.
conclusionsThe current study provides valuable insights into the experiences and needs of mothers caring for a child with an intellectual disability during the COVID-19 pandemic.
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