Evidence map›Paper›PMID 34075531›Full record

ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2021

Standard set of patient-reported outcomes for personality disorder.

Valentina Prevolnik Rupel, Beth Jagger, Luz Sousa Fialho, Lisa-Marie Chadderton, Timea Gintner, Anroud Arntz, Åse-Line Baltzersen, Julia Blazdell, Jan van Busschbach, Marika Cencelli and 11 more

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In one paragraph

Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
27citing papers in PubMed, 3 pooled it
12.1field-weighted citation impact, top 2% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

27 citing papers in PubMed, 3 syntheses or guidelines pooled it, 55 citations in OpenAlex.

  1. Pooled it
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  9. Psychosocial functioning in personality disorders.Borderline personality disorder and emotion dysregulation · 2025
    Review
  10. Article
  11. Article
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  18. Personality disorders: the impact of severity on societal costs.European archives of psychiatry and clinical neuroscience · 2025
    Article
  19. Article
  20. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

21 authors at 13 institutions in 9 countries.

Valentina Prevolnik RupelInstitute for Economic Research, Kardeljeva ploščad 17, 1000, Ljubljana, Slovenia. rupelv@ier.si.ORCID http://orcid.org/0000-0002-1238-7156
Beth JaggerInternational Consortium for Health Outcomes Measurement, Cambridge, USA.
Luz Sousa FialhoInternational Consortium for Health Outcomes Measurement, Cambridge, USA.
Lisa-Marie ChaddertonInternational Consortium for Health Outcomes Measurement, Cambridge, USA.
Timea GintnerInternational Consortium for Health Outcomes Measurement, Cambridge, USA.
Anroud ArntzUniversity of Amsterdam, Amsterdam, The Netherlands.
Åse-Line BaltzersenPatient Representative, The Norwegian National Advisory Unit On Personality Psychiatry, Oslo, Norway.
Julia BlazdellThe Institute of Mental Health, WLMHT Managed Clinical Network, Southall, UK.
Jan van BusschbachErasmus MC, Rotterdam, The Netherlands.
Marika CencelliPatient Representative, London, UK.
Andrew ChanenThe University of Melbourne, Melbourne, Australia.
Charlotte DelvauxPatient representative, Te gek!?, Ghent, Belgium.
Fieke van GorpPatient Representative, Ghent, Belgium.
Lucie LangfordUniversity of Toronto, Toronto, Canada.
Brian McKennaAuckland University of Technology, Auckland, New Zealand.
Paul MoranUniversity of Bristol, Bristol, UK.
Karla PachecoTecnologico de Monterrey, Monterrey, Mexico.
Carla SharpUniversity of Houston, Houston, USA.
Wei WangNorwegian University of Science and Technology (NTNU), Trondheim, Norway.
Karen WrightUniversity of Central Lancashire, Preston, UK.
Mike J CrawfordImperial College, London, UK.
Auckland University of Technology · NZErasmus MC · NLImperial College London · GBInstitute for Economic Research · SIInstitute of Mental Health · GBNorwegian University of Science and Technology · NOTecnológico de Monterrey · MXThe University of Melbourne · AUUniversity of Amsterdam · NLUniversity of Bristol · GBUniversity of Houston · USUniversity of Lancashire · GBUniversity of Toronto · CA

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeThe purpose of the article is to present standard set of outcomes for people with personality disorder (PD), in order to facilitate patient outcome measurement worldwide.

methodsThe International Consortium for Health Outcomes Measurement (ICHOM) gathered a multidisciplinary international working group, consisting of 16 experts, including clinicians, nurses, psychologists, methodologists and patient representatives, to develop a standard set of outcome measures for people with PD. The Delphi method was used to reach consensus on the scope of the set, outcome domains, outcome measures, case-mix variables and time points for measuring outcomes in service users. For each phase, a project team prepared materials based on systematic literature reviews and consultations with experts.

resultsThe working group decided to include PD, as defined by International Classification of Diseases 11th revision (ICD-11). Eleven core outcomes and three optional outcomes across four health domains (mental health, behaviour, functioning and recovery) were defined as those relevant for people with PD. Validated measures for the selected outcomes were selected, some covering more than one outcome. Case-mix variables were aligned to other ICHOM mental health standard sets and consisted of demographic factors and those related to the treatment that people received. The group recommended that most outcomes are measured at baseline and annually.

conclusionThe international minimum standard set of outcomes has the potential to improve clinical decision making through systematic measurement and comparability. This will be key in improving the standard of health care for people with PD across the world.

Indexed as

Patient Reported Outcome MeasuresQuality of LifeConsensusDelphi TechniqueHumansOutcome Assessment, Health CarePersonality DisordersDelphi procedureICHOMPatient-reported outcomesPersonality disorderQuality of lifeRisk-adjustment variables

Identifiers

PMID34075531
PMCPMC8602216
OpenAlexW3164740785

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.