Evidence map›Paper›PMID 34071622›Full record

ArticleCancers2021

The Australian Youth Cancer Service: Developing and Monitoring the Activity of Nationally Coordinated Adolescent and Young Adult Cancer Care.

Pandora Patterson, Kimberley R Allison, Helen Bibby, Kate Thompson, Jeremy Lewin, Taia Briggs, Rick Walker, Michael Osborn, Meg Plaster, Allan Hayward and 4 more

Open access · goldAbstract read
In one paragraph

Article in Cancers, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
16citing papers in PubMed, 1 pooled it
7.0field-weighted citation impact, top 3% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

16 citing papers in PubMed, 1 synthesis or guideline pooled it, 28 citations in OpenAlex.

  1. Using consumer engagement strategies to improve healthcare safety for young people: An exploration of the relevance and suitability of current approaches.Health expectations : an international journal of public participation in health care and health policy · 2022
    Pooled it
  2. Barriers and facilitators to implementing an online psychological intervention for adolescent and young adult cancer survivors in a community setting.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Article
  3. Article
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  8. Access to Care for Adolescents and Young Adults With Cancer in the United States: State of the Literature.Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2024
    Review
  9. Future of Treatment of Adolescents and Young Adults With ALL: A Vision for Collaboration and Equity.Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2024
    Review
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors at 9 institutions in 1 country.

Pandora PattersonResearch, Evaluation and Policy Unit, CanTeen, Sydney, NSW 2042, Australia.
Kimberley R AllisonResearch, Evaluation and Policy Unit, CanTeen, Sydney, NSW 2042, Australia.ORCID 0000-0002-4446-5868
Helen BibbyResearch, Evaluation and Policy Unit, CanTeen, Sydney, NSW 2042, Australia.ORCID 0000-0001-6623-2611
Kate ThompsonVictoria/Tasmania Youth Cancer Service, Peter MacCallum Cancer Centre, Melbourne, VIC 3000, Australia.
Jeremy LewinVictoria/Tasmania Youth Cancer Service, Peter MacCallum Cancer Centre, Melbourne, VIC 3000, Australia.
Taia BriggsNew South Wales/Australian Capital Territory Youth Cancer Service, Sydney, NSW 2031, Australia.
Rick WalkerQueensland Youth Cancer Service, Queensland Children's Hospital, Brisbane, QLD 4101, Australia.
Michael OsbornSouth Australia/Northern Territory Youth Cancer Service, Royal Adelaide Hospital, Adelaide, SA 5000, Australia.ORCID 0000-0002-1288-9930
Meg PlasterWestern Australia Youth Cancer Service, Sir Charles Gairdner Hospital, Nedlands, WA 6009, Australia.
Allan HaywardSouth Australia/Northern Territory Youth Cancer Service, Royal Adelaide Hospital, Adelaide, SA 5000, Australia.
Roslyn HenneyQueensland Youth Cancer Service, Queensland Children's Hospital, Brisbane, QLD 4101, Australia.
Shannyn GeorgeWestern Australia Youth Cancer Service, Sir Charles Gairdner Hospital, Nedlands, WA 6009, Australia.
Dominic KeuskampResearch, Evaluation and Policy Unit, CanTeen, Sydney, NSW 2042, Australia.
Antoinette AnazodoNew South Wales/Australian Capital Territory Youth Cancer Service, Sydney, NSW 2031, Australia.
Canteen · AURoyal Adelaide Hospital · AUSir Charles Gairdner Hospital · AUThe University of Melbourne · AUCancer Australia · AUChildren's Health Queensland Hospital and Health Service · AUThe University of Queensland · AUThe University of Sydney · AUUNSW Sydney · AU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Adolescents and young adults (aged 15-25 years) diagnosed with cancer have unique medical and psychosocial experiences and care needs, distinct from those of paediatric and older adult patients. Since 2011, the Australian Youth Cancer Services have provided developmentally appropriate, multidisciplinary and comprehensive care to these young patients, facilitated by national service coordination and activity data collection and monitoring. This paper reports on how the Youth Cancer Services have conceptualised and delivered quality youth cancer care in four priority areas: clinical trial participation, oncofertility, psychosocial care and survivorship. National activity data collected by the Youth Cancer Services between 2016-17 and 2019-20 are used to illustrate how service monitoring processes have facilitated improvements in coordination and accountability across multiple indicators of quality youth cancer care, including clinical trial participation, access to fertility information and preservation, psychosocial screening and care and the transition from active treatment to survivorship. Accounts of both service delivery and monitoring and evaluation processes within the Australian Youth Cancer Services provide an exemplar of how coordinated initiatives may be employed to deliver, monitor and improve quality cancer care for adolescents and young adults.

Indexed as

activity dataadolescent and young adultclinical trial participationoncofertilitypsychosocialservice deliverysurvivorship

Identifiers

PMID34071622
PMCPMC8198716
OpenAlexW3164676408

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.