ArticleJournal of the Endocrine Society2021
The Need for Patient-centered Education Among Patients Newly Diagnosed With a Pituitary Tumor.
Article in Journal of the Endocrine Society, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
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Who cites it
7 citing papers in PubMed, 17 citations in OpenAlex.
- Patient perceptions of pituitary incidentaloma diagnosis and follow-up: a Pituitary Society international patient survey.Pituitary · 2025Article
- A core outcome set for pituitary surgery research: an international delphi consensus study.Pituitary · 2025Article
- Identifying research priorities for pituitary adenoma surgery: an international Delphi consensus statement.Pituitary · 2025Article
- Person-centered support for patients with a pituitary tumor following surgery.Endocrine connections · 2025Article
- Patient perspectives on acromegaly disease burden: insights from a community meeting.Frontiers in endocrinology · 2025Article
- Article
- The Effect of Digital Storytelling on the Anxiety of Patients with Pituitary Adenoma Undergoing Transsphenoidal Surgery: A Randomized Controlled Clinical Trial.Iranian journal of nursing and midwifery researchArticle
Corrections and comments
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Authors and funding
7 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesBrain tumors, including pituitary adenomas (PA), cause anxiety and distress, with a high unmet need for information correlating with increased anxiety. Condition-specific education may alleviate anxiety. We explored patients' experience around the diagnosis of a PA and piloted a patient education intervention to address peridiagnostic anxiety in adults diagnosed with PA.
methodsAnxiety, patient satisfaction, patient knowledge, and need for information were measured prior to, immediately after, and 1 month following the appointment in this multimethods study. A phone interview to explore patient diagnostic and intervention experiences was analyzed using qualitative methods.
resultsA total of 17 patients participated in the study; 15 completed the interview. The baseline need for information was high. Disease-specific anxiety decreased, and patient knowledge and satisfaction increased significantly after the initial visit. Interview analysis identified 3 main themes: (1) the importance of communication; (2) the need for information; and (3) the impact of the diagnosis on patient experience.
conclusionsFor patients with newly diagnosed PA, the diagnostic experience was associated with high levels of anxiety. Patients expressed a need for information. Information delivery reduced anxiety and had a positive impact on patient satisfaction. PRACTICE IMPLICATIONS: The study findings suggest a need for a streamlined diagnostic process with readily accessible information.
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